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Journal of Autism and Developmental Disorders
Gepubliceerd in:

20-03-2024 | original Article

Autistic People’s Perspectives on Functioning Labels and Associated Reasons, and Community Connectedness

Auteurs: Nathan Keates, Farradeh Martin, Krysia Emily Waldock

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2025

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Abstract

Purpose

Functioning labels have been used in relation to autistic people and differentiating between support needs. The main purpose of our study was to identify perspectives regarding language about being autistic. In regard to themselves and functioning. Furthermore, we investigated the influential factor of community connectedness on use of language acceptability and functioning labels.

Methods

516 autistic respondents completed our survey. We asked about demographic characteristics, how respondents would like autistic people to be termed in the survey, and their acceptability (person with autism, Aspergers, disorder, conditions, living with autism, autistic). We also asked about respondents? Autistic Community Connectedness, acknowledging the implicit nature of language and identity (Stets & Serpe in New directions in identity theory and research, Oxford University Press, 2016). The main focus of our survey was whether or not to use functioning labels, and the supporting rationale.

Results

97% of respondents stated that they find the term ‘autistic’ acceptable. Respondents who did see merit in using functioning labels to describe autistic people also reported not necessarily using them about themselves. Community membership was found to impact the participants’ language preferences to describe the support needs of autistic people, including the use of functioning labels.

Conclusion

The proposed best option for language preferences is not to find consensus but instead, opt for the optimal choice that people find the least offensive or disagreeable. This means using identity-first language and not using functioning labels.
vorige artikel The Role of Theory of Mind, Executive Functions, and Central Coherence in Reading Comprehension for Children with ASD and Typical Development
volgende artikel The Economic Impacts of COVID-19 on Autistic Children and Their Families
Voetnoten
1
16 identified themselves the following: 4 as agender, 3 as genderfluid, 3 as trans, 2 as auti-gender, 2 as demiguy or demiboy, 1 as quoigender, and 1 as gender-queer.
 
2
Social essentialism is defined as “beliefs that group members are fundamentally the same” (Williams et al., 2022).
 
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Metagegevens
Titel
Autistic People’s Perspectives on Functioning Labels and Associated Reasons, and Community Connectedness
Auteurs
Nathan Keates
Farradeh Martin
Krysia Emily Waldock
Publicatiedatum
20-03-2024
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 4/2025
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-024-06316-3

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