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Gepubliceerd in:

25-05-2024

Children’s and adolescents’ perspectives on living with advanced cancer: A meta-synthesis of qualitative research

Auteurs: Andrea Johnson, Ridwaanah Ali, Ekaterina An, Carolyn Wilson, Kimberley Widger

Gepubliceerd in: Quality of Life Research | Uitgave 8/2024

Abstract

Purpose

The quality of life (QOL) experiences of children and adolescents living with advanced cancer have been under-explored. Enhancing QOL for this population is a dominant goal of their healthcare yet, there has been little research identifying aspects that impact their QOL. The purpose of this meta-synthesis was to identify themes of QOL informed from the voices of children and adolescents living with advanced cancer.

Methods

This meta-synthesis utilized meta-ethnography to synthesize data from individual studies in order to develop new conceptual understanding of what is important to children and adolescents about their lives when living with advanced cancer.

Results

Our analysis identified themes of QOL relevant to children and adolescents with advanced cancer: (1) feeling supported and wanting to support others; (2) re-establishing normal; (3) suffering and emotional distress; (4) new perspectives; (5) maintaining autonomy; and (6) awareness of time. These themes differed from more traditional dimensions of QOL often applied to children and adolescents with cancer.

Conclusion

This research is novel as its developed themes originated from the direct voices and expressed perspectives of children and adolescents living with advanced cancer. This is a significant initial step toward both understanding QOL in this specific context and the measurement of QOL for this population.

vorige artikel Predictive factors and quality of life assessment among patients with spinal cord injury in the Middle East: a systematic review

volgende artikel Assessing and accounting for measurement in intensive longitudinal studies: current practices, considerations, and avenues for improvement

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Titel: Children’s and adolescents’ perspectives on living with advanced cancer: A meta-synthesis of qualitative research
Auteurs: Andrea Johnson
Ridwaanah Ali
Ekaterina An
Carolyn Wilson
Kimberley Widger
Publicatiedatum: 25-05-2024
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 8/2024
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-024-03688-y

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Children’s and adolescents’ perspectives on living with advanced cancer: A meta-synthesis of qualitative research

Abstract

Purpose

Methods

Results

Conclusion

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