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Quality of Life Research
Gepubliceerd in:

20-06-2023

Health-related quality of life profiles in adolescents and young adults with chronic conditions

Auteurs: Suwei Wang, Cara J. Arizmendi, Dan V. Blalock, Dandan Chen, Li Lin, David Thissen, I-Chan Huang, Darren A. DeWalt, Bryce B. Reeve

Gepubliceerd in: Quality of Life Research | Uitgave 11/2023

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Abstract

Purpose

To assess health-related quality of life (HRQOL) among adolescents and young adults (AYAs) with chronic conditions.

Methods

AYAs (N = 872) aged 14–20 years completed NIH’s Patient-Reported Outcomes Measurement Information System® (PROMIS®) measures of physical function, pain interference, fatigue, social health, depression, anxiety, and anger. Latent profile analysis (LPA) was used to group AYAs into HRQOL profiles using PROMIS T-scores. The optimal number of profiles was determined by model fit statistics, likelihood ratio test, and entropy. Multinomial logistic regression models were used to examine how LPA’s HRQOL profile membership was associated with patient demographic and chronic conditions. The model prediction accuracy on profile membership was evaluated using Huberty’s I index with a threshold of 0.35 for good effect.

Results

A 4-profile LPA model was selected. A total of 161 (18.5%), 256 (29.4%), 364 (41.7%), and 91 (10.4%) AYAs were classified into Minimal, Mild, Moderate, and Severe HRQOL Impact profiles. AYAs in each profile had distinctive mean scores with over a half standard deviation (5-points in PROMIS T-scores) of difference between profiles across most HRQOL domains. AYAs who were female or had conditions such as mental health condition, hypertension, and self-reported chronic pain were more likely to be in the Severe HRQOL Impact profile. The Huberty’s I index was 0.36.

Conclusions

Approximately half of AYAs with a chronic condition experience moderate to severe HRQOL impact. The availability of risk prediction models for HRQOL impact will help to identify AYAs who are in greatest need of closer clinical care follow-up.
vorige artikel How do older adults receiving aged care services understand and respond to the EQ-5D-5L? A think-aloud study in residential care
volgende artikel Curvilinear prediction of posttraumatic growth on quality of life: a five-wave longitudinal investigation of breast cancer survivors
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Metagegevens
Titel
Health-related quality of life profiles in adolescents and young adults with chronic conditions
Auteurs
Suwei Wang
Cara J. Arizmendi
Dan V. Blalock
Dandan Chen
Li Lin
David Thissen
I-Chan Huang
Darren A. DeWalt
Bryce B. Reeve
Publicatiedatum
20-06-2023
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 11/2023
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-023-03463-5

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