Welkom bij Scalda & Bohn Stafleu van Loghum
Scalda heeft ervoor gezorgd dat je Mijn BSL eenvoudig en snel kunt raadplegen.Je kunt de producten hieronder links aanschaffen en rechts inloggen.
01-12-2005 | Onderzoek
Hoe denken patiënten met vergevorderd hartfalen over het sterven?
Auteurs: prof.dr. Dick Willems, dr. Tony Hak, prof.dr. Frans Visser, prof.dr. Gerrit van der Wal
Log in om toegang te krijgenshare
DELEN
Deel dit onderdeel of sectie (kopieer de link)
-
Optie A:
-
Optie B:Deel de link per e-mail
Samenvatting
Willems DL, Hak A, Visser F, Van der Wal G. Hoe denken patiënten met vergevorderd hartfalen over het sterven? Huisarts Wet 2005;48(12):608-14.
Doel Wij onderzochten over een periode van 1 jaar de gedachten en opvattingen van patiënten in het eindstadium van hartfalen over het sterven.
Methode Prospectief longitudinaal multipel gevalsonderzoek met kwalitatieve interviewtechnieken. We sloten 31 patiënten uit 2 ziekenhuizen in die voldeden aan een of meer van de volgende criteria: NYHA-klasse III of IV, ejectiefractie <25%, minstens één ziekenhuisopname voor hartfalen. Wij verzamelden uitspraken van patiënten met vergevorderd hartfalen, gedaan in semi-gestructureerde interviews, over de kwaliteit van sterven en medische beslissingen rond het levenseinde.
Resultaten Veel respondenten dachten alleen tijdens exacerbaties na over het sterven. Zij noemden onder andere de volgende aspecten van een gepast sterven: enige mate van nuttigheid, prognostische informatie, een gepaste duur van het sterven en een helder bewustzijn. Slechts weinig respondenten spraken zich uit voor euthanasie of zelfdoding, maar ze wilden allemaal dat levensverlengende behandeling op een zeker moment gestaakt of niet gestart zou worden.
Conclusies In ons onderzoek werden enkele elementen van gepast sterven genoemd die anders waren dan in andere onderzoeken naar opvattingen over sterven en die specifiek lijken voor hartfalen. De neiging van patiënten om niet aan het sterven te denken, roept ethische vragen op.
Log in om toegang te krijgen
Voetnoten
Literatuur
go back to reference Clark J. Patient centred death. BMJ 2003;327:174-5.CrossRefPubMed
Clark J. Patient centred death. BMJ 2003;327:174-5.CrossRefPubMed
go back to reference Cowie MR, Mosterd A, Wood DA. The epidemiology of heart failure. Eur Heart J 1997;18:208-25.PubMed
Cowie MR, Mosterd A, Wood DA. The epidemiology of heart failure. Eur Heart J 1997;18:208-25.PubMed
go back to reference Davis RC, Hobbs FDR, Lip GYH. ABC of heart failure: History and epidemiology. BMJ 2000;320:39-42.CrossRefPubMed
Davis RC, Hobbs FDR, Lip GYH. ABC of heart failure: History and epidemiology. BMJ 2000;320:39-42.CrossRefPubMed
go back to reference Bonneux L, Barendregt JJ, Meeter K, Bonsel GJ, Van der Maas PJ. Estimating clinical morbidity due to ischemic heart disease and congestive heart failure: the future rise of heart failure. Am J Public Health 1994;84:20-8.CrossRefPubMed
Bonneux L, Barendregt JJ, Meeter K, Bonsel GJ, Van der Maas PJ. Estimating clinical morbidity due to ischemic heart disease and congestive heart failure: the future rise of heart failure. Am J Public Health 1994;84:20-8.CrossRefPubMed
go back to reference Mosterd A, Hoes AW, De Bruyne MC. Prevalence of heart failure and left ventricular dysfunction in the general population; The Rotterdam Study. Eur Heart J 1999;20:447-55.CrossRefPubMed
Mosterd A, Hoes AW, De Bruyne MC. Prevalence of heart failure and left ventricular dysfunction in the general population; The Rotterdam Study. Eur Heart J 1999;20:447-55.CrossRefPubMed
go back to reference Reitsma JB, Mosterd A, De Craen AJ. Increase in hospital admission rates for heart failure in The Netherlands, 1980-1993. Heart 1996;76:388-92.CrossRefPubMed
Reitsma JB, Mosterd A, De Craen AJ. Increase in hospital admission rates for heart failure in The Netherlands, 1980-1993. Heart 1996;76:388-92.CrossRefPubMed
go back to reference Addington-Hall J, McCarthy M. Regional Study of Care for the Dying: methods and sample characteristics. Palliat Med 1995;9:27-35.CrossRefPubMed
Addington-Hall J, McCarthy M. Regional Study of Care for the Dying: methods and sample characteristics. Palliat Med 1995;9:27-35.CrossRefPubMed
go back to reference Fox E, Landrum-McNiff K, Zhong Z, Dawson NV, Wu AW, Lynn J. Evaluation of prognostic criteria for determining hospice eligibility in patients with advanced lung, heart, or liver disease. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. JAMA 1999;282:1638-45.CrossRefPubMed
Fox E, Landrum-McNiff K, Zhong Z, Dawson NV, Wu AW, Lynn J. Evaluation of prognostic criteria for determining hospice eligibility in patients with advanced lung, heart, or liver disease. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. JAMA 1999;282:1638-45.CrossRefPubMed
go back to reference Gibbs LM, Addington-Hall J, Gibbs JS. Dying from heart failure: lessons from palliative care. Many patients would benefit from palliative care at the end of their lives. BMJ 1998;317:961-2.PubMed
Gibbs LM, Addington-Hall J, Gibbs JS. Dying from heart failure: lessons from palliative care. Many patients would benefit from palliative care at the end of their lives. BMJ 1998;317:961-2.PubMed
go back to reference McCarthy M, Lay M, Addington-Hall J. Dying from heart disease. J R Coll Physicians Lond 1996;30:325-8.PubMed
McCarthy M, Lay M, Addington-Hall J. Dying from heart disease. J R Coll Physicians Lond 1996;30:325-8.PubMed
go back to reference Candlish P, Watts P, Redman S, Whyte P, Lowe J. Elderly patients with heart failure: a study of satisfaction with care and quality of life. Int J Qual Health Care 1998;10:141-6.CrossRefPubMed
Candlish P, Watts P, Redman S, Whyte P, Lowe J. Elderly patients with heart failure: a study of satisfaction with care and quality of life. Int J Qual Health Care 1998;10:141-6.CrossRefPubMed
go back to reference Stanek EJ, Oates MB, McGhan WF, Denofrio D, Loh E. Preferences for treatment outcomes in patients with heart failure: symptoms versus survival. J Card Fail 2000;6:225-32.CrossRefPubMed
Stanek EJ, Oates MB, McGhan WF, Denofrio D, Loh E. Preferences for treatment outcomes in patients with heart failure: symptoms versus survival. J Card Fail 2000;6:225-32.CrossRefPubMed
go back to reference Havranek EP, McGovern KM, Weinberger J, Brocato A, Lowes BD, Abraham WT. Patient preferences for heart failure treatment: utilities are valid measures of health-related quality of life in heart failure. J Card Fail 1999;5:85-91.CrossRefPubMed
Havranek EP, McGovern KM, Weinberger J, Brocato A, Lowes BD, Abraham WT. Patient preferences for heart failure treatment: utilities are valid measures of health-related quality of life in heart failure. J Card Fail 1999;5:85-91.CrossRefPubMed
go back to reference Califf RM, Vidaillet H, Goldman L. Advanced congestive heart failure: What do patients want? Am Heart J 1998;135:S320-6.CrossRefPubMed
Califf RM, Vidaillet H, Goldman L. Advanced congestive heart failure: What do patients want? Am Heart J 1998;135:S320-6.CrossRefPubMed
go back to reference Levenson JW, McCarthy EP, Lynn J, Davis RB, Phillips RS. The last six months of life for patients with congestive heart failure. JAGS 2000;48:S101-9.
Levenson JW, McCarthy EP, Lynn J, Davis RB, Phillips RS. The last six months of life for patients with congestive heart failure. JAGS 2000;48:S101-9.
go back to reference Fried TR, Van Doorn C, O’Leary JR, Tinetti ME, Drickamer MA. Older person’s preferences for home vs hospital care in the treatment of acute illness. Arch Intern Med 2000;160:1501-6.CrossRefPubMed
Fried TR, Van Doorn C, O’Leary JR, Tinetti ME, Drickamer MA. Older person’s preferences for home vs hospital care in the treatment of acute illness. Arch Intern Med 2000;160:1501-6.CrossRefPubMed
go back to reference Fried TR, Bradley EH, Towle VR, Allore H. Understanding the treatment preferences of seriously ill patients. N Engl J Med 2002;346:1061-6.CrossRefPubMed
Fried TR, Bradley EH, Towle VR, Allore H. Understanding the treatment preferences of seriously ill patients. N Engl J Med 2002;346:1061-6.CrossRefPubMed
go back to reference Steinhauser KE, Clipp EC, McNeilly M, Christakis NA, McIntyre LM, Tulsky JA. In search of a good death: observations of patients, families, and providers. Ann Intern Med 2000;132:825-32.PubMed
Steinhauser KE, Clipp EC, McNeilly M, Christakis NA, McIntyre LM, Tulsky JA. In search of a good death: observations of patients, families, and providers. Ann Intern Med 2000;132:825-32.PubMed
go back to reference Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000;284:2476-82.CrossRefPubMed
Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000;284:2476-82.CrossRefPubMed
go back to reference Emanuel EJ, Fairclough DL, Emanuel LL. Attitudes and desires related to euthanasia and physician-assisted suicide among terminally ill patients and their caregivers. JAMA 2000;284:2460-8.CrossRefPubMed
Emanuel EJ, Fairclough DL, Emanuel LL. Attitudes and desires related to euthanasia and physician-assisted suicide among terminally ill patients and their caregivers. JAMA 2000;284:2460-8.CrossRefPubMed
go back to reference Britten N. Qualitative interviews in medical research. BMJ 1995;311:251-3.PubMed
Britten N. Qualitative interviews in medical research. BMJ 1995;311:251-3.PubMed
go back to reference Yin RK. Case study research: design and methods. Newbury Park (CA): Sage, 1994.
Yin RK. Case study research: design and methods. Newbury Park (CA): Sage, 1994.
go back to reference Criteria Committee of the New York Heart Association. Nomenclatura and criteria for diagnosis. Diseases of the heart and blood vessels. Boston: Little, Brown & Co, 1973.
Criteria Committee of the New York Heart Association. Nomenclatura and criteria for diagnosis. Diseases of the heart and blood vessels. Boston: Little, Brown & Co, 1973.
go back to reference The AM, Hak T, Koeter G, Van der Wal G. Collusion in doctor-patient communication about imminent death: an ethnographic study. BMJ 2000;321:1376-81.CrossRefPubMed
The AM, Hak T, Koeter G, Van der Wal G. Collusion in doctor-patient communication about imminent death: an ethnographic study. BMJ 2000;321:1376-81.CrossRefPubMed
go back to reference Nohria A, Lewis E, Stevenson LW. Medical management of advanced heart failure. JAMA 2002;287:628-40.CrossRefPubMed
Nohria A, Lewis E, Stevenson LW. Medical management of advanced heart failure. JAMA 2002;287:628-40.CrossRefPubMed
go back to reference Stewart S, MacIntyre K, Hole DJ, Capewell S, McMurray JJV. More ‘malignant’ than cancer? Five-year survival following a first admission for heart failure. Eur J Heart Fail 2001;3:315-22.CrossRefPubMed
Stewart S, MacIntyre K, Hole DJ, Capewell S, McMurray JJV. More ‘malignant’ than cancer? Five-year survival following a first admission for heart failure. Eur J Heart Fail 2001;3:315-22.CrossRefPubMed
go back to reference Fox E, Landrum K, Zhong Z, Dawson NV, Wu AW, Lynn J. Evaluation of prognostic criteria for determining hospice eligibility in patients with advanced lung, heart, or liver disease. JAMA 1999;282:1638-45.CrossRefPubMed
Fox E, Landrum K, Zhong Z, Dawson NV, Wu AW, Lynn J. Evaluation of prognostic criteria for determining hospice eligibility in patients with advanced lung, heart, or liver disease. JAMA 1999;282:1638-45.CrossRefPubMed
Metagegevens
- Titel
- Hoe denken patiënten met vergevorderd hartfalen over het sterven?
- Auteurs
-
prof.dr. Dick Willems
dr. Tony Hak
prof.dr. Frans Visser
prof.dr. Gerrit van der Wal
- Publicatiedatum
- 01-12-2005
- Uitgeverij
- Bohn Stafleu van Loghum
- DOI
- https://doi.org/10.1007/BF03084159