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Quality of Life Research
Gepubliceerd in:

01-06-2008

The use of focus groups in the development of the PROMIS pediatrics item bank

Auteurs: Tasanee R. Walsh, Debra E. Irwin, Andrea Meier, James W. Varni, Darren A. DeWalt

Gepubliceerd in: Quality of Life Research | Uitgave 5/2008

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Abstract

Purpose

To understand differences in perceptions of patient-reported outcome domains between children with asthma and children from the general population. We used this information in the development of patient-reported outcome items for the Patient-Reported Outcomes Measurement Information System Pediatrics project.

Methods

We conducted focus groups composed of ethnically, racially, and geographically diverse youth (8–12, 13–17 years) from the general population and youth with asthma. We performed content analysis to identify important themes.

Results

We identified five unique and different challenges that may confront youth with asthma as compared to general population youth: (1) They experience more difficulties when participating in physical activities; (2) They may experience anxiety about having an asthma attack at anytime and anywhere; (3) They may experience sleep disturbances and fatigue secondary to their asthma symptoms; (4) Their health condition has a greater effect on their emotional well-being and interpersonal relationships; and (5) Youth with asthma report that asthma often leaves them with insufficient energy to complete their school activities, especially physical activities.

Conclusions

The results confirm unique experiences for children with asthma across a broad range of health domains and enhance the breadth of all domains when creating an item bank.
vorige artikel The impact of chronic hepatitis C and co-morbid illnesses on health-related quality of life
volgende artikel Content validity in the PROMIS social-health domain: a qualitative analysis of focus-group data
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Metagegevens
Titel
The use of focus groups in the development of the PROMIS pediatrics item bank
Auteurs
Tasanee R. Walsh
Debra E. Irwin
Andrea Meier
James W. Varni
Darren A. DeWalt
Publicatiedatum
01-06-2008
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 5/2008
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-008-9338-1

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