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Quality of Life Research
Gepubliceerd in:

01-09-2015 | Brief Communication

Reliability of the autoimmune bullous disease quality of life (ABQOL) questionnaire in the USA

Auteurs: Deshan F. Sebaratnam, Joyce Okawa, Aimee Payne, Dédée F. Murrell, Victoria P. Werth

Gepubliceerd in: Quality of Life Research | Uitgave 9/2015

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Abstract

Purpose

To evaluate the reliability of the autoimmune bullous diseases quality of life (ABQOL) questionnaire in a North American patient cohort.

Methods

Patients attending the dermatology clinics of the University of Pennsylvania with a histological diagnosis of an autoimmune bullous disease (AIBD) and self-reported proficiency in English were recruited to participate in the study. Patients completed the ABQOL questionnaire at Day 0 and Day 3. Internal consistency was calculated through Cronbach’s alpha. Test–retest reliability was determined by the intraclass correlation coefficient.

Results

Of the 45 patients enrolled in the study, 39 patients (87 %) participated to completion. The mean age was 60.7 years with an equal sex distribution observed. Patients had a range of AIBD including pemphigus vulgaris, bullous pemphigoid, pemphigus foliaceus, epidermolysis bullosa acquisita, mucous membrane pemphigoid and linear IgA disease. Cronbach’s alpha was calculated to be 0.90. The intraclass correlation coefficient was calculated to be 0.93 (95 % confidence interval 0.88–0.94).

Conclusion

The ABQOL was found to be reliable tested by internal consistency and test–retest reliability in an American patient cohort. It represents a promising disease-specific outcome measure for patients with AIBD.
vorige artikel Systematic content evaluation and review of measurement properties of questionnaires for measuring self-reported fatigue among older people
volgende artikel Development of a cross-cultural item bank for measuring quality of life related to mental health in multiple sclerosis patients
Literatuur
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Metagegevens
Titel
Reliability of the autoimmune bullous disease quality of life (ABQOL) questionnaire in the USA
Auteurs
Deshan F. Sebaratnam
Joyce Okawa
Aimee Payne
Dédée F. Murrell
Victoria P. Werth
Publicatiedatum
01-09-2015
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 9/2015
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-0965-z

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