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Gepubliceerd in:

27-06-2019

The moderating role of age in the relationship between different stressors and the quality of life of the relatives of people with intellectual disabilities

Auteurs: Lucía Oñate, Esther Calvete

Gepubliceerd in: Quality of Life Research | Uitgave 11/2019

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Abstract

Purpose

The level of support needed for adaptive functioning and behavioral problems of individuals with intellectual disabilities (ID) can be a source of stress for caregivers. The aim of this study was to explore the moderating role of caregivers’ age on the associations between these stressors and quality of life (QoL) of the family caregivers. As these sources of stress in people with ID can coexist, the triple interaction between stressors and age was also examined.

Methods

208 relatives (mean age = 50.98 years, SD = 12.86) of people with ID participated in the research. Participants answered a questionnaire with sociodemographic variables, measures of stressors (level of support for adaptive functioning of the people with ID and behavioral problems) and measures of QoL (WHOQOL-BREF).

Results

The association between the level of support needed for adaptive functioning and lower QoL was only significant among older relatives, whereas the association between behavioral problems and lower QoL was only significant among younger relatives. A three-way interaction between behavioral problems, level of support needed, and age indicated that the association between the level of support for adaptive functioning and QoL in older relatives was greater when there were higher levels of behavioral problems.

Conclusions

The role of caregivers’ age in their QoL differs depending on the nature of the stressor, and an accumulation of stressors can have a particularly negative impact on older caregivers. Interventions should be adapted for caregivers of different ages and take into account the particular sources of stress they have to cope with.
Literatuur
3.
go back to reference American Psychiatric Association. (2013). DSM- V. Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Association.CrossRef American Psychiatric Association. (2013). DSM- V. Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Association.CrossRef
5.
go back to reference Lozano, M., & Pérez, I. (2000). Necesidades de la familia de las personas con retraso mental y necesidades de apoyo generalizado. In M. A. Verdugo (Ed.), Familias y Discapacidad Intelectual (pp. 199–225). Madrid: Colección FEAPS. Lozano, M., & Pérez, I. (2000). Necesidades de la familia de las personas con retraso mental y necesidades de apoyo generalizado. In M. A. Verdugo (Ed.), Familias y Discapacidad Intelectual (pp. 199–225). Madrid: Colección FEAPS.
6.
go back to reference Cuskelly, M. (2006). Parents of adults with an intellectual disability. Australian Institute of Family Studies: Family Matters, 74, 20–25. Cuskelly, M. (2006). Parents of adults with an intellectual disability. Australian Institute of Family Studies: Family Matters, 74, 20–25.
7.
go back to reference Baker, B. L., Blacher, J., Kopp, C. B., & Kraemer, B. (1997). Parenting children with mental retardation. In N. W. Bray (Ed.), International review of research in mental retardation (pp. 1–45). San Diego, CA: Academic Press. Baker, B. L., Blacher, J., Kopp, C. B., & Kraemer, B. (1997). Parenting children with mental retardation. In N. W. Bray (Ed.), International review of research in mental retardation (pp. 1–45). San Diego, CA: Academic Press.
13.
go back to reference Malhotra, S., Khan, W., & Bhatia, M. S. (2012). Quality of life of parents having children with developmental disabilities. Delhi Psychiatric Society, 15, 171–176. Malhotra, S., Khan, W., & Bhatia, M. S. (2012). Quality of life of parents having children with developmental disabilities. Delhi Psychiatric Society, 15, 171–176.
14.
go back to reference Lazarus, R. S., & Folkman, S. (1984). Coping and adaptation. In W. D. Gentry (Ed.), The handbook of behavioral medicine (pp. 282–325). New York: Guilford. Lazarus, R. S., & Folkman, S. (1984). Coping and adaptation. In W. D. Gentry (Ed.), The handbook of behavioral medicine (pp. 282–325). New York: Guilford.
17.
go back to reference Minnes, P., & Woodford, L. (2005). Well-being in aging parents caring for an adult with a developmental disability. Journal on Developmental Disabilities, 11, 47–66. Minnes, P., & Woodford, L. (2005). Well-being in aging parents caring for an adult with a developmental disability. Journal on Developmental Disabilities, 11, 47–66.
19.
go back to reference Lawton, M. P., Kleban, M. H., & Dean, J. (1993). Affect and age: Cross-sectional comparisons of structure and prevalence. Psychology and Aging, 8, 165–175.CrossRef Lawton, M. P., Kleban, M. H., & Dean, J. (1993). Affect and age: Cross-sectional comparisons of structure and prevalence. Psychology and Aging, 8, 165–175.CrossRef
25.
go back to reference Brown, R. I., Hong, K., Shearer, J., Wang, M., & Wang, S. Y. (2010). Family quality of life in several countries: Results and discussion of satisfaction in families where there is a child with a disability. In R. Kobler (Ed.), Enhancing the quality of life of people with intellectual disabilities (pp. 377–398). Dordrecht: Springer.CrossRef Brown, R. I., Hong, K., Shearer, J., Wang, M., & Wang, S. Y. (2010). Family quality of life in several countries: Results and discussion of satisfaction in families where there is a child with a disability. In R. Kobler (Ed.), Enhancing the quality of life of people with intellectual disabilities (pp. 377–398). Dordrecht: Springer.CrossRef
26.
go back to reference Seltzer, M. M., & Krauss, M. W. (1994). Aging parents with co-resident adult children: The impact of lifelong caregiving. In M. M. Seltzer, M. W. Krauss, & M. P. Janicki (Eds.), Life course perspectives on adulthood and old age (pp. 3–18). Washington, DC: American Association on Mental Retardation. Seltzer, M. M., & Krauss, M. W. (1994). Aging parents with co-resident adult children: The impact of lifelong caregiving. In M. M. Seltzer, M. W. Krauss, & M. P. Janicki (Eds.), Life course perspectives on adulthood and old age (pp. 3–18). Washington, DC: American Association on Mental Retardation.
30.
31.
go back to reference Krauss, M. W., & Seltzer, M. M. (1993). Coping strategies among older mothers of adults with retardation: A life span developmental perspective. In A. P. Turnbull, J. M. Patterson, S. J. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families and disability: Participatory research in action in families who have a member with developmental disabilities (pp. 173–182). Baltimore: Brookes. Krauss, M. W., & Seltzer, M. M. (1993). Coping strategies among older mothers of adults with retardation: A life span developmental perspective. In A. P. Turnbull, J. M. Patterson, S. J. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families and disability: Participatory research in action in families who have a member with developmental disabilities (pp. 173–182). Baltimore: Brookes.
33.
go back to reference Roberto, K. A. (1995). Family caregivers of aging adults with disabilities: A review of the caregiving literature. In K. A. Roberto (Ed.), The elderly caregiver: Caring for adults with developmental disabilities (pp. 3–18). Newbury Park, CA: Sage Publications. Roberto, K. A. (1995). Family caregivers of aging adults with disabilities: A review of the caregiving literature. In K. A. Roberto (Ed.), The elderly caregiver: Caring for adults with developmental disabilities (pp. 3–18). Newbury Park, CA: Sage Publications.
35.
go back to reference Olson, D., McCubbin, H., Barnes, H., Larsen, A., Muxen, M., & Wilson, M. (1983). Families: What makes them work?. Beverly Hills, CA: Sage. Olson, D., McCubbin, H., Barnes, H., Larsen, A., Muxen, M., & Wilson, M. (1983). Families: What makes them work?. Beverly Hills, CA: Sage.
36.
go back to reference American Association of Intellectual and Developmental Disabilities (AAID). (2011). Discapacidad intelectual: definición, clasificación y sistemas de apoyo (11th ed.). (M.A Verdugo, Trad.). Madrid: Alianza Editorial. American Association of Intellectual and Developmental Disabilities (AAID). (2011). Discapacidad intelectual: definición, clasificación y sistemas de apoyo (11th ed.). (M.A Verdugo, Trad.). Madrid: Alianza Editorial.
41.
go back to reference Haveman, M., Van Berkum, G., Reijnders, R., & Heller, T. (1997). Differences in service needs, time demands, and caregiving burden among parents of persons with mental retardation across the life cycle. Family Relations, 46, 417–425. https://doi.org/10.2307/585101.CrossRef Haveman, M., Van Berkum, G., Reijnders, R., & Heller, T. (1997). Differences in service needs, time demands, and caregiving burden among parents of persons with mental retardation across the life cycle. Family Relations, 46, 417–425. https://​doi.​org/​10.​2307/​585101.CrossRef
49.
52.
go back to reference Heller, T., & Factor, A. (1993). Aging family caregivers: Support resources and changes in burden and placement desire. American Journal on Mental Retardation, 98, 417–426.PubMed Heller, T., & Factor, A. (1993). Aging family caregivers: Support resources and changes in burden and placement desire. American Journal on Mental Retardation, 98, 417–426.PubMed
57.
go back to reference Domínguez-Panchón, A. I., González-Fraile, E., González, A. B. C., Frade, M. R., Sánchez-Rial, M., Calo, M. N. F., … & Ventura, D. R. Estudio de eficacia de una intervención psicoeducativa para la reducción de la sobrecarga del cuidador principal de personas con discapacidad intelectual: análisis de línea base del estudio EDUCA-IV.Informaciones Psiquiátricas, 227, 67–88. Domínguez-Panchón, A. I., González-Fraile, E., González, A. B. C., Frade, M. R., Sánchez-Rial, M., Calo, M. N. F., … & Ventura, D. R. Estudio de eficacia de una intervención psicoeducativa para la reducción de la sobrecarga del cuidador principal de personas con discapacidad intelectual: análisis de línea base del estudio EDUCA-IV.Informaciones Psiquiátricas, 227, 67–88.
60.
go back to reference WHOQOL Group. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. The WHOQOL Group. Psychological Medicine, 28, 551–558.CrossRef WHOQOL Group. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. The WHOQOL Group. Psychological Medicine, 28, 551–558.CrossRef
62.
go back to reference WHOQOL Group. (1998). The World Health Organization Quality of Life Assessment (WHOQOL): Development and general psychometric properties. Social Science and Medicine, 46, 1569–1585.CrossRef WHOQOL Group. (1998). The World Health Organization Quality of Life Assessment (WHOQOL): Development and general psychometric properties. Social Science and Medicine, 46, 1569–1585.CrossRef
65.
go back to reference American Association of Mental Retardation: Luckasson, R.; Coulter, D. L.; Polloway, E. A.; Reiss, S.; Schalock, R. L.; Snell, M. E.; Spitalnik, D. M. & Stark, J. A. (2004): Retraso Mental: Definición, clasificación y sistemas de apoyo (10th ed.). (M.A. Verdugo, & C. Jenaro, Trad.). Madrid: Alianza Editorial. American Association of Mental Retardation: Luckasson, R.; Coulter, D. L.; Polloway, E. A.; Reiss, S.; Schalock, R. L.; Snell, M. E.; Spitalnik, D. M. & Stark, J. A. (2004): Retraso Mental: Definición, clasificación y sistemas de apoyo (10th ed.). (M.A. Verdugo, & C. Jenaro, Trad.). Madrid: Alianza Editorial.
66.
go back to reference American Psychiatric Association. (2002). DSM-IV-TR: Manual diagnóstico y estadístico de los trastornos mentales. Texto revisado. Barcelona: Masson. American Psychiatric Association. (2002). DSM-IV-TR: Manual diagnóstico y estadístico de los trastornos mentales. Texto revisado. Barcelona: Masson.
68.
go back to reference Dodd, D. C. H., Zabriskie, R. B., Widmer, M. A., & Eggett, D. (2009). Contributions of family leisure to family functioning among families that include children with developmental disabilities. Journal of Leisure Research, 41, 261–286.CrossRef Dodd, D. C. H., Zabriskie, R. B., Widmer, M. A., & Eggett, D. (2009). Contributions of family leisure to family functioning among families that include children with developmental disabilities. Journal of Leisure Research, 41, 261–286.CrossRef
69.
go back to reference Bruininks, R. H., Woodcock, R. W., Weatherman, R. F., & Hill, B. K. (1996). Scales of independent behavior revised. Itasca, IL: Riverside. Bruininks, R. H., Woodcock, R. W., Weatherman, R. F., & Hill, B. K. (1996). Scales of independent behavior revised. Itasca, IL: Riverside.
Metagegevens
Titel
The moderating role of age in the relationship between different stressors and the quality of life of the relatives of people with intellectual disabilities
Auteurs
Lucía Oñate
Esther Calvete
Publicatiedatum
27-06-2019
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 11/2019
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-019-02239-0