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Quality of Life Research
Gepubliceerd in:

01-10-2012

Using three legacy measures to develop a health-related quality of life tool for young adult survivors of childhood cancer

Auteurs: I-Chan Huang, Gwendolyn P. Quinn, Pey-Shan Wen, Elizabeth A. Shenkman, Dennis A. Revicki, Kevin Krull, Zhushan Li, Patricia D. Shearer

Gepubliceerd in: Quality of Life Research | Uitgave 8/2012

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Abstract

Background

Little attention has been paid to selecting and developing health-related quality of life (HRQOL) measurement tools for young adult survivors of childhood cancer (YASCC). The primary purpose of this study was to develop a HRQOL tool for YASCC based on three legacy instruments.

Methods

Data collected from 151 YASCC were analyzed. HRQOL was measured using the Medical Outcomes Study SF-36, Quality of Life in Adult Cancer Survivors, and Quality of Life-Cancer Survivor. We used the following stages to develop our HRQOL tool: mapping items from three instruments into a common HRQOL construct, checking dimensionality using confirmatory factor analyses (CFA), and equating items using Rasch modeling.

Results

We assigned 123 items to a HRQOL construct comprised of six generic and eight survivor-specific domains. CFA retained 107 items that meet the assumptions of unidimensionality and local independence. Rasch analysis retained 68 items that satisfied the indices of information-weighted/outlier-sensitive fit statistic mean square. However, items in most domains possess relatively easy measurement properties, whereas YASCC’s underlying HRQOL was on the middle to higher levels.

Conclusions

Psychometric properties of the established tool for measuring HRQOL of YASCC were not satisfied. Future studies need to refine this tool, especially adding more challenging items.
vorige artikel ‘All the burden on all the carers’: exploring quality of life with family caregivers of Huntington’s disease patients
volgende artikel Translation and validation of Korean Functional Assessment of Cancer Therapy-Esophageal (FACT-E) scale with squamous cell carcinoma and chemoradiation-only patients
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Metagegevens
Titel
Using three legacy measures to develop a health-related quality of life tool for young adult survivors of childhood cancer
Auteurs
I-Chan Huang
Gwendolyn P. Quinn
Pey-Shan Wen
Elizabeth A. Shenkman
Dennis A. Revicki
Kevin Krull
Zhushan Li
Patricia D. Shearer
Publicatiedatum
01-10-2012
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 8/2012
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-011-0055-9

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