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Journal of Autism and Developmental Disorders
Gepubliceerd in:

06-04-2023 | Original Paper

A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies

Auteurs: Sarah S. Mire, Dieu M. Truong, Georgina J. Sakyi, Mycah L. Ayala-Brittain, Jelisa D. Boykin, Christian M. Stewart, Fre’Dasia Daniels, Brenda Duran, Scarlett Gardner, Alexandra M. Barth, Georgette Richardson, Shannon L. McKee

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2024

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Abstract

Underrepresentation of socioeconomically, culturally, and/or linguistically diverse (SCLD) children with neurodevelopmental disorders (NDD) and their families has become a focal point for researchers. This systematic review aimed to identify researchers’ strategies for recruiting and retaining SCLD families of children with NDD, published between 1993 and 2018. One hundred twenty-six articles were included, and study samples were categorized as “High SCLD” and “Low SCLD”. Chi-square tests of independence were used to determine associations between sample composition (i.e., High/Low SCLD sample) and study characteristics reported. Significant associations were found between sample composition and studies that explicitly stated intention to recruit SCLD families, χ2(1) = 12.70, p < .001, Phi = 0.38 (moderate); and for studies that reported the following participant characteristics: language, χ2(1) = 29.58, p < .001, Phi = 0.48 (moderate-to-large); and race/ethnicity + SES + language, χ2(1) = 19.26, p <. 001, Phi = 0.39 (moderate). However, associations were not found between recruitment and retention approaches and whether studies included High SCLD or Low SCLD samples. Further study of NDD researchers’ recruitment and retention approaches that successfully include SCLD families is needed.
vorige artikel Time-Based and Event-Based Prospective Memory in Adults with Autism Spectrum Disorder: A Virtual Week Investigation
volgende artikel Determination of Nutrient Intake and Dietary Antioxidant Capacity in Autism Spectrum Disorder: A Case–Control Study
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Metagegevens
Titel
A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies
Auteurs
Sarah S. Mire
Dieu M. Truong
Georgina J. Sakyi
Mycah L. Ayala-Brittain
Jelisa D. Boykin
Christian M. Stewart
Fre’Dasia Daniels
Brenda Duran
Scarlett Gardner
Alexandra M. Barth
Georgette Richardson
Shannon L. McKee
Publicatiedatum
06-04-2023
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 6/2024
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-023-05968-x

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