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Gepubliceerd in:

20-01-2025 | Letter to the Editor

Introducing the PROMIS-16 profile 1.0

Auteurs: Maria Orlando Edelen, Ron D. Hays, Patricia M. Herman

Gepubliceerd in: Quality of Life Research | Uitgave 1/2025

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Extract

This special section introduces the Patient-Reported Outcomes Measurement Information System (PROMIS®) [1] 16-item Profile (PROMIS-16). The motivation for its development was to provide a brief multiple-scale option suitable for assessing patients in clinical care and for researchers needing a parsimonious health-related quality of life (HRQoL) measure. Many researchers and clinicians want to include PROMIS measures in their battery of assessments but have limited bandwidth for additional items. This has led to uptake of the 10-item PROMIS Global-10 [2], a measure that yields global mental and physical HRQoL summary scores, but no domain-level information, which limits its usefulness. In contrast, the PROMIS-16 assesses eight HRQoL domains: physical function, cognitive function, ability to participate in social roles, pain interference, fatigue, sleep disturbance, depression, and anxiety. Like other PROMIS Profile measures, one can also estimate the physical and mental HRQoL summary scores from the PROMIS-16. Its inclusion of the cognitive function domain makes it possible to calculate the PROPr preference-based score for use in economic evaluations [3]. …
Literatuur
1.
go back to reference Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., Amtmann, D., Bode, R., Buysse, D., Choi, S., Cook, K., Devellis, R., DeWalt, D., Fries, J. F., Gershon, R., Hahn, E. A., Lai, J. S., Pilkonis, P., Revicki, D., Rose, M., & PROMIS Cooperative Group. (2010). The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. Journal of Clinical Epidemiology, 63(11), 1179–1194. https://doi.org/10.1016/j.jclinepi.2010.04.011CrossRef Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., Amtmann, D., Bode, R., Buysse, D., Choi, S., Cook, K., Devellis, R., DeWalt, D., Fries, J. F., Gershon, R., Hahn, E. A., Lai, J. S., Pilkonis, P., Revicki, D., Rose, M., & PROMIS Cooperative Group. (2010). The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. Journal of Clinical Epidemiology, 63(11), 1179–1194. https://​doi.​org/​10.​1016/​j.​jclinepi.​2010.​04.​011CrossRef
2.
go back to reference Hays, R. D., Bjorner, J. B., Revicki, D. A., Spritzer, K. L., & Cella, D. (2009). Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(7), 873–880. https://doi.org/10.1007/s11136-009-9496-9CrossRefPubMed Hays, R. D., Bjorner, J. B., Revicki, D. A., Spritzer, K. L., & Cella, D. (2009). Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(7), 873–880. https://​doi.​org/​10.​1007/​s11136-009-9496-9CrossRefPubMed
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go back to reference Dewitt, B., Feeny, D., Fischhoff, B., Cella, D., Hays, R. D., Hess, R., Pilkonis, P. A., Revicki, D. A., Roberts, M. S., Tsevat, J., Yu, L., & Hanmer, J. (2018). Estimation of a preference-based summary score for the patient-reported outcomes measurement information system: The PROMIS®-Preference (PROPr) scoring system. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 38(6), 683–698. https://doi.org/10.1177/0272989X18776637CrossRefPubMed Dewitt, B., Feeny, D., Fischhoff, B., Cella, D., Hays, R. D., Hess, R., Pilkonis, P. A., Revicki, D. A., Roberts, M. S., Tsevat, J., Yu, L., & Hanmer, J. (2018). Estimation of a preference-based summary score for the patient-reported outcomes measurement information system: The PROMIS®-Preference (PROPr) scoring system. Medical Decision Making: An International Journal of the Society for Medical Decision Making, 38(6), 683–698. https://​doi.​org/​10.​1177/​0272989X18776637​CrossRefPubMed
Metagegevens
Titel
Introducing the PROMIS-16 profile 1.0
Auteurs
Maria Orlando Edelen
Ron D. Hays
Patricia M. Herman
Publicatiedatum
20-01-2025
Uitgeverij
Springer New York
Gepubliceerd in
Quality of Life Research / Uitgave 1/2025
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-024-03885-9