Quality of Life Research

Introducing the PROMIS-16 profile 1.0

• Letter to the Editor

Maria Orlando Edelen, Ron D. Hays, Patricia M. Herman

Development of an ultra-short measure of eight domains of health-related quality of life for research and clinical care: the patient-reported outcomes measurement information system® PROMIS®-16 profile

• Open Access

Maria Orlando Edelen, Chengbo Zeng, Ron D. Hays, Anthony Rodriguez, Janel Hanmer, Judy Baumhauer, David Cella, Bryce B. Reeve, Patricia M. Herman

Correction: Development of an ultra-short measure of eight domains of health-related quality of life for research and clinical care: the patient-reported outcomes measurement information systemⓇ PROMISⓇ-16 profile

• Open Access
• Correction

Maria Orlando Edelen, Chengbo Zeng, Ron D. Hays, Anthony Rodriguez, Janel Hanmer, Judy Baumhauer, Judy Cella, Bryce B. Reeve, Patricia M. Herman

The PROMIS-16 reproduces the PROMIS-29 physical and mental health summary scores accurately in a probability-based internet panel

• Open Access

Ron D. Hays, Patricia M. Herman, Anthony Rodriguez, Mary Slaughter, Chengbo Zeng, Maria Orlando Edelen

Comparing patient-reported outcomes measurement information system® (PROMIS®)-16 domain scores with the PROMIS-29 and 5-item PROMIS cognitive function scores

• Open Access

Chengbo Zeng, Ron D. Hays, Anthony Rodriguez, Janel Hanmer, Patricia M. Herman, Maria Orlando Edelen

Longitudinal validation of the PROMIS-16 in a sample of adults in the United States with back pain

• Open Access

Anthony Rodriguez, Chengbo Zeng, Ron D. Hays, Patricia M. Herman, Maria O. Edelen

Agreement of PROMIS Preference (PROPr) scores generated from the PROMIS-29 + 2 and the PROMIS-16

• Open Access

Janel Hanmer, Chengbo Zeng, Amy M. Cizik, Jason H. Raad, Joel Tsevat, Anthony Rodriguez, Ron D. Hays, Maria Orlando Edelen

Applicability of the PRISMA-COSMIN guidelines for systematic reviews of outcome measurement instruments to ISOQOL’s special interest group for clinical practice

• Letter to the Editor

Angela C. Wolff, Elizabeth J. Austin, Amy M. Cizik

PRISMA-COSMIN: response from ISOQOL’s ANZ SIG leadership

• Letter to the Editor

Imogen Ramsey, Nadia Corsini, Jessica Roydhouse

PRISMA-COSMIN for OMIs 2024: response from ISOQOL’s child health special interest group

• Letter to the Editor

Harpreet Chhina, Sumedh Bele, Zephanie Tyack

Response to letters from the ISOQOL SIGs regarding PRISMA-COSMIN for OMIs 2024

• Letter to the Editor

Ellen B. M. Elsman, Lidwine B. Mokkink, Martin Offringa

Leah M. McClimans: Patient-Centered Measurement: Ethics, Epistemology, and Dialogue in Contemporary Medicine

• Book Review

Sebastian Rodriguez Duque

He/She/They - gender inclusivity in developing and using health-related questionnaires: a scoping review

• Open Access
• Review

Desiree Scott, Sarah Derrett, Valentina Prevolnik Rupel, Jennifer Jelsma, Gagan Gurung, Georgina Yaa Oduro, Cassie Withey-Rila

Agreement between patient- and proxy-reported outcome measures in adult musculoskeletal trauma and injury: a scoping review

• Review

Jochem H. Raats, Noa H. M. Ponds, D. T. Brameier, P. A. Bain, H. J. Schuijt, D. van der Velde, M. J. Weaver

A landscape review to identify what matters to patients with thrombotic cardiovascular diseases and patient-reported outcome instruments which can be used to capture the patient experience

• Open Access

Alexandra I. Barsdorf, John Fastenau, Shannon Lee, Xiaoyan Li, Ellen O’Brien, Blue Stevenson, Brandon Becker

Impact of rehabilitation with dental implants on the quality of life of patients undergoing maxillofacial reconstruction: a systematic review

• Open Access

Simra Azher, Roisin McGrath, Yasaman Mohammadi Kamalabadi, Georgios Tsakos, Felix Sim, Ankur Singh

Uncovering the story within the story: a scoping review of response shift in qualitative research

Carolyn E. Schwartz, I-Chan Huang, Gudrun Rohde, Richard L. Skolasky

Conceptualizing meaningful between-group difference in change over time: a demonstration of possible viewpoints

• Commentary

Andrew Trigg, Nicolai D. Ayasse, Cheryl D. Coon

Quality of life of women with a screen-detected versus clinically detected breast cancer in the Netherlands: a prospective cohort study

• Open Access

Abyan Irzaldy, Johannes D. M. Otten, Lindy M. Kregting, Dieuwke R. Mink van der Molen, Helena M. Verkooijen, Nicolien T. van Ravesteyn, Eveline A. M. Heijnsdijk, Annemiek Doeksen, Carmen C. van der Pol, Daniel J. Evers, Miranda F. Ernst, Ida J. Korfage, Harry J. de Koning, Mireille J. M. Broeders

Moving beyond barriers: a mixed-method study to develop evidence-based strategies to improve implementation of PROMs in clinical oncology care

Eva Boomstra, Iris Walraven, Iris M.C. van der Ploeg, Michel W.J.M. Wouters, Maaike W. van de Kamp, Richard Dirven, Elaine Albers, Itske Fraterman, Marit Poulissen, Lonneke V. van de Poll-Franse, Kelly M. de Ligt

Enhancing quality of life measurement: adapting the ASCOT easy read for older adults accessing social care

• Open Access

James Caiels, Stacey Rand, Rasa Mikelyte, Lucy Webster, Elizabeth Field, Ann-Marie Towers

Pharmacist-facilitated Patient Reported Outcome Measure (PROM) monitoring: developing an EHR SmartForm© to monitor side effects of oral oncolytics during routine telehealth encounters

• Open Access

Angela M. Stover, Debbie Liang, Dana Mueller, Rachel Kurtzman, Christiana Ikemeh, Courtney Canter, Sonali Acharya, Jill Brese, Kaitlyn Buhlinger, Kevin Chen, Evan W. Colmenares, Aimee Faso, Benyam Muluneh, Bianka Patel, Jeffrey S. Reichard, Rushabh M. Shah, Michael Tilkens, John Valgus, Lorinda A. Coombs, Jennifer Elston Lafata, Jennifer L. Lund, Emily M. Ray, Gita Mody, Mary-Haston Vest

Norms for the EQ-5D-5L among the general adult population in Alberta, Canada

• Open Access

Fatima Al Sayah, Arafat Alam, Hilary Short, Arto Ohinmaa, Markus Lahtinen, Shaun Malo, Jeffrey A. Johnson

Development of a prediction model for clinically-relevant fatigue: a multi-cancer approach

• Open Access

Dhirendra Adiprakoso, Dimitris Katsimpokis, Simone Oerlemans, Nicole P. M. Ezendam, Marissa C. van Maaren, Janine A. van Til, Thijs G. W. van der Heijden, Floortje Mols, Katja K. H. Aben, Geraldine R. Vink, Miriam Koopman, Lonneke V. van de Poll-Franse, Belle H. de Rooij

Health-related quality of life in 205 children with arthrogryposis multiplex congenita

Shahrzad Nematollahi, Emmanouil Rampakakis, Michael Amara, Reggie C. Hamdy, Frank Rauch, Lauren C. Hyer, Michelle A. James, Haluk Altiok, Ellen Raney, Jonathan Pellett, Cary Mielke, Sarah B. Nossov, Sena Tavukcu, Philip F. Giampietro, Noémi Dahan-Oliel

Bidirectional association between frailty and quality of life within English longitudinal study of aging

• Open Access

Ali Alattas, Farag Shuweihdi, Kate Best, Silviya Nikolova, Robert West

Health-related quality of life dynamics: modeling insights from immunotherapy

• Open Access

Zeynep Hasgul, Anne Spanjaart, Sumreen Javed, Ali Akhavan, Marie José Kersten, Mohammad S. Jalali

Correction: A short scale to measure health-related quality of life after traumatic brain injury in children and adolescents (QOLIBRI-OS-KID/ADO): psychometric properties and German reference values

• Open Access
• Correction

Marina Zeldovich, Leonie Krol, Inga K. Koerte, Katrin Cunitz, Matthias Kieslich, Marlene Henrich, Knut Brockmann, Anna Buchheim, Michael Lendt, Christian Auer, Axel Neu, Joenna Driemeyer, Ulrike Wartemann, Claudius Thomé, Daniel Pinggera, Steffen Berweck, Michaela V. Bonfert, Joachim Suss, Holger Muehlan, Nicole von Steinbuechel