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Quality of Life Research
Gepubliceerd in:

25-11-2017 | Editorial

Introduction to special section: measuring what matters

Auteurs: Steven I. Blum, Sara Ahmed, Emuella Flood, Frans J. Oort, Carolyn E. Schwartz

Gepubliceerd in: Quality of Life Research | Uitgave 1/2018

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In 2015, ISOQOL President, Claire Snyder, PhD, and the ISOQOL Board introduced two key themes for ISOQOL to focus on over the coming years: Measuring What Matters (e.g., what outcomes should we measure) and Making Measurement Meaningful (e.g., what do the scores mean) [1]. An additional topic, Making Sense of Methods (e.g., how do you interpret psychometric data), also subsequently emerged [2]. To advance the dialog on Measuring What Matters, ISOQOL held its inaugural Measuring What Matters educational symposium in July 2016. Measuring What Matters is more than just a catchy slogan or catch phrase. It is a strategic imperative and a call for action for researchers to develop patient-reported outcomes (PRO) and other instruments which assess meaningful health outcomes—but for whom and for what purpose? When selecting an instrument, we need to also consider the context in which the measure will be used. …
volgende artikel Beyond study participants: a framework for engaging patients in the selection or development of clinical outcome assessments for evaluating the benefits of treatment in medical product development
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Metagegevens
Titel
Introduction to special section: measuring what matters
Auteurs
Steven I. Blum
Sara Ahmed
Emuella Flood
Frans J. Oort
Carolyn E. Schwartz
Publicatiedatum
25-11-2017
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 1/2018
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-017-1743-x

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Moving from significance to real-world meaning: methods for interpreting change in clinical outcome assessment scores

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