Skip to main content

Welkom bij Scalda & Bohn Stafleu van Loghum

Scalda heeft ervoor gezorgd dat je Mijn BSL eenvoudig en snel kunt raadplegen.Je kunt de producten hieronder links aanschaffen en rechts inloggen.

Registreer

Schaf de BSL Academy aan: 

BSL Academy mbo AG

Eenmaal aangeschaft kun je thuis, of waar ook ter wereld toegang krijgen tot Mijn BSL.

Heb je een vraag, neem dan contact op met Jan van der Velden.

Login

Als u al geregistreerd bent, hoeft u alleen maar in te loggen om onbeperkt toegang te krijgen tot Mijn BSL.

Top
Gepubliceerd in:

01-04-2014 | Original Paper

Parental Perceptions of Services Provided for Children with Autism in Jordan

Auteurs: Mohammad A. AL Jabery, Diana H. Arabiat, Hatem A. AL Khamra, Iman Amy Betawi, Sinaria Kamil Abdel Jabbar

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 3/2014

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Providing formal support for children with autism and their parents is important and mandatory to improve children’s abilities and enhance the capabilities of parents. The present study attempted to investigate the perceptions of parents of children with autism regarding the services provided in Jordan. A questionnaire consisting of five sections was designed and distributed to a sample of 60 parents of children with autism (5–18 years old) among four special education institutions in Jordan. The questionnaire addressed five domains: demographics, type and number of received services, methods and difficulties of obtaining services, parents’ satisfaction, and parents’ perceived needed services. The results revealed that the service delivery system with which parents interacted was composed of multiple places and providers, but had several difficulties. Parents participating in this study expressed an average satisfaction with the received services. Issues pertaining to the cost of services, parents-professional partnerships, and overall quality of services were seen by parents as sources of low satisfaction. On the other hand, parents expressed the need for early intervention, family counseling, and community awareness services. Further suggestions and implications are presented in the study.
Literatuur
go back to reference Al Khatib, J., & Al Khatib, F. (2008). Educating students with mild intellectual disabilities in regular schools in Jordan. The Journal of the International Association of Special Education, 9(1), 109–117. Al Khatib, J., & Al Khatib, F. (2008). Educating students with mild intellectual disabilities in regular schools in Jordan. The Journal of the International Association of Special Education, 9(1), 109–117.
go back to reference American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author.
go back to reference Batten, A., Corbett, C., Rosenblatt, M., Withers, L., & Yuille, R. (2006). Make school make sense: Autism and education: The reality for families today. London, UK: National Autistic Society. Batten, A., Corbett, C., Rosenblatt, M., Withers, L., & Yuille, R. (2006). Make school make sense: Autism and education: The reality for families today. London, UK: National Autistic Society.
go back to reference Bitterman, A., Daley, T., Misra, S., Carlson, E., & Markowitz, J. (2008). A national sample of preschoolers: Special education services and parent satisfaction. Journal of Autism and Developmental Disabilities, 38, 1509–1571.CrossRef Bitterman, A., Daley, T., Misra, S., Carlson, E., & Markowitz, J. (2008). A national sample of preschoolers: Special education services and parent satisfaction. Journal of Autism and Developmental Disabilities, 38, 1509–1571.CrossRef
go back to reference Brewin, B., Renwick, R., & Schormans, A. (2008). Parental perspectives of the quality of life in school environments for children with Asperger syndrome. Focus on Autism and Other Developmental Disabilities, 23(4), 242–252.CrossRef Brewin, B., Renwick, R., & Schormans, A. (2008). Parental perspectives of the quality of life in school environments for children with Asperger syndrome. Focus on Autism and Other Developmental Disabilities, 23(4), 242–252.CrossRef
go back to reference Crabtree, S. (2007). Families’ responses to the social inclusion of children with developmental disabilities in the United Arab Emirates. Disability & Society, 22(1), 49–62.CrossRef Crabtree, S. (2007). Families’ responses to the social inclusion of children with developmental disabilities in the United Arab Emirates. Disability & Society, 22(1), 49–62.CrossRef
go back to reference Dunlap, G., Iovannone, R., & Kincaid, D. (2008). Essential components for effective autism educational programs. In J. K. Luiselli, D. C. Russo, W. P. Christian, & S. M. Wilcznski (Eds.), Effective practices for children with Autism: Educational and support interventions that work (1st ed., pp. 111–137). New York: Oxford University Press. Dunlap, G., Iovannone, R., & Kincaid, D. (2008). Essential components for effective autism educational programs. In J. K. Luiselli, D. C. Russo, W. P. Christian, & S. M. Wilcznski (Eds.), Effective practices for children with Autism: Educational and support interventions that work (1st ed., pp. 111–137). New York: Oxford University Press.
go back to reference Goin-Kochel, R., Mackintosh, V., & Myers, B. (2009). Parental reports on the efficacy of treatments and therapies for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3, 528–537.CrossRef Goin-Kochel, R., Mackintosh, V., & Myers, B. (2009). Parental reports on the efficacy of treatments and therapies for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3, 528–537.CrossRef
go back to reference Green, V. A. (2007). Parental experiences with treatments for autism. Journal of Developmental and Physical Disabilities, 19, 91–101.CrossRef Green, V. A. (2007). Parental experiences with treatments for autism. Journal of Developmental and Physical Disabilities, 19, 91–101.CrossRef
go back to reference Green, V. A., Pituch, K. A., Ichon, J., Choi, A., O’Reilly, M., & Sigafoos, J. (2006). Internet survey of treatments used by parents of children with autism. Research in autism and Developmental Disabilities, 27, 70–84.CrossRef Green, V. A., Pituch, K. A., Ichon, J., Choi, A., O’Reilly, M., & Sigafoos, J. (2006). Internet survey of treatments used by parents of children with autism. Research in autism and Developmental Disabilities, 27, 70–84.CrossRef
go back to reference Hess, K., Morrier, M., Heflin, L., & Ivey, M. (2008). Autism treatment survey: Services received by children with autism spectrum disorders in public school classrooms. Journal of Autism and Developmental Disorders, 38(5), 961–971.PubMedCrossRef Hess, K., Morrier, M., Heflin, L., & Ivey, M. (2008). Autism treatment survey: Services received by children with autism spectrum disorders in public school classrooms. Journal of Autism and Developmental Disorders, 38(5), 961–971.PubMedCrossRef
go back to reference Higher Council for Affairs of Persons with Disabilities (HCAPD). (2007). The law on the rights of persons with disabilities: Law number 31 for the year 2007. Amman: Author. Higher Council for Affairs of Persons with Disabilities (HCAPD). (2007). The law on the rights of persons with disabilities: Law number 31 for the year 2007. Amman: Author.
go back to reference Higher Council for Affairs of Persons with Disabilities (HCAPD). (2010). [The Index of special education institutions educating persons with disabilities in the Hashemite Kingdom of Jordan]. Amman: Author. Higher Council for Affairs of Persons with Disabilities (HCAPD). (2010). https://static-content.springer.com/image/art%3A10.1007%2Fs10826-012-9703-0/MediaObjects/10826_2012_9703_Figa_HTML.gif [The Index of special education institutions educating persons with disabilities in the Hashemite Kingdom of Jordan]. Amman: Author.
go back to reference Järbrink, K., Fombonne, E., & Knapp, M. (2003). Measuring the parental, service and cost impacts of children with Autistic Spectrum Disorders: A pilot study. Journal of Autism and Developmental Disorders, 33(4), 395–402.PubMedCrossRef Järbrink, K., Fombonne, E., & Knapp, M. (2003). Measuring the parental, service and cost impacts of children with Autistic Spectrum Disorders: A pilot study. Journal of Autism and Developmental Disorders, 33(4), 395–402.PubMedCrossRef
go back to reference Kohelr, F. (1999). Examining the services received by young children with autism and their families: A survey of parent responses. Focus on Autism and Other Developmental Disabilities, 3, 150–158.CrossRef Kohelr, F. (1999). Examining the services received by young children with autism and their families: A survey of parent responses. Focus on Autism and Other Developmental Disabilities, 3, 150–158.CrossRef
go back to reference Krauss, M., Gulley, S., Sciegaj, M., & Wells, R. (2003). Access to specialty medical care for children with mental retardation, autism, and other special health care needs. Mental Retardation, 41(5), 329–339.PubMedCrossRef Krauss, M., Gulley, S., Sciegaj, M., & Wells, R. (2003). Access to specialty medical care for children with mental retardation, autism, and other special health care needs. Mental Retardation, 41(5), 329–339.PubMedCrossRef
go back to reference Liptak, G. S., Orlando, M., Yingling, J. T., Theurer-Kaufman, K. L., Malay, D. P., Tompikns, L. A., et al. (2006). Satisfaction with primary health care received by families of children with developmental disabilities. Journal of Pediatric Health Care, 20(4), 245–252.PubMedCrossRef Liptak, G. S., Orlando, M., Yingling, J. T., Theurer-Kaufman, K. L., Malay, D. P., Tompikns, L. A., et al. (2006). Satisfaction with primary health care received by families of children with developmental disabilities. Journal of Pediatric Health Care, 20(4), 245–252.PubMedCrossRef
go back to reference Mackintosh, V., Goin-Kochel, R., & Myers, B. (2012). “What do you like/dislike about treatments you’re currently using?”: A qualitative study of parents of children with Autism Spectrum Disorders. Focus on Autism and Other Developmental Disabilities, 27(1), 51–60.CrossRef Mackintosh, V., Goin-Kochel, R., & Myers, B. (2012). “What do you like/dislike about treatments you’re currently using?”: A qualitative study of parents of children with Autism Spectrum Disorders. Focus on Autism and Other Developmental Disabilities, 27(1), 51–60.CrossRef
go back to reference Mackintosh, V., Myers, B., & Goin-Kochel, R. (2005). Sources of information and support used by parents of children with autism spectrum disorders. Journal of Developmental Disabilities, 12, 41–51. Mackintosh, V., Myers, B., & Goin-Kochel, R. (2005). Sources of information and support used by parents of children with autism spectrum disorders. Journal of Developmental Disabilities, 12, 41–51.
go back to reference McConachie, H., & Robinson, G. (2006). What services do young children with autism spectrum disorder receive. Child: Care, Health and Development, 32(3), 371–385. McConachie, H., & Robinson, G. (2006). What services do young children with autism spectrum disorder receive. Child: Care, Health and Development, 32(3), 371–385.
go back to reference Mohan, P. (2009). Autism spectrum disorders in Dubai, United Arab Emirates: Problems in access to comprehensive care. Unpublished master thesis, Sarah Lawrence College, Bronxville, NY, USA. Mohan, P. (2009). Autism spectrum disorders in Dubai, United Arab Emirates: Problems in access to comprehensive care. Unpublished master thesis, Sarah Lawrence College, Bronxville, NY, USA.
go back to reference Montes, G., Halterman, J., & Magyar, I. (2009). Access to and satisfaction with school and community health services for US children with ASD. Pediatrics, 124(S4), S407–S413.PubMedCrossRef Montes, G., Halterman, J., & Magyar, I. (2009). Access to and satisfaction with school and community health services for US children with ASD. Pediatrics, 124(S4), S407–S413.PubMedCrossRef
go back to reference Parsons, S., & Lewis, A. (2010). The home-education of children with special needs or disabilities in the UK: Views of parents from an online survey. International Journal of Inclusive Education, 14, 67–86.CrossRef Parsons, S., & Lewis, A. (2010). The home-education of children with special needs or disabilities in the UK: Views of parents from an online survey. International Journal of Inclusive Education, 14, 67–86.CrossRef
go back to reference Parsons, S., Lewis, A., & Ellins, A. (2009). The views and experiences of parents of children with autistic spectrum disorder about educational provision: Comparisons with parents of children with other disabilities from online survey. European Journal of Special Needs Education, 24, 1–34.CrossRef Parsons, S., Lewis, A., & Ellins, A. (2009). The views and experiences of parents of children with autistic spectrum disorder about educational provision: Comparisons with parents of children with other disabilities from online survey. European Journal of Special Needs Education, 24, 1–34.CrossRef
go back to reference Renty, J., & Roeyers, H. (2006). Satisfaction with formal support and education for children with autism spectrum disorder: The voices of the parents. Child: Care, Health and Development, 32(3), 371–385. Renty, J., & Roeyers, H. (2006). Satisfaction with formal support and education for children with autism spectrum disorder: The voices of the parents. Child: Care, Health and Development, 32(3), 371–385.
go back to reference Rogers, S. J., & Vismara, L. A. (2008). Evidence-based comprehensive treatments for early autism. Journal of Clinical Child and Adolescent Psychology, 37, 8–83.PubMedCentralPubMedCrossRef Rogers, S. J., & Vismara, L. A. (2008). Evidence-based comprehensive treatments for early autism. Journal of Clinical Child and Adolescent Psychology, 37, 8–83.PubMedCentralPubMedCrossRef
go back to reference Ruble, L., Heflinger, C., Rnfrew, J., & Saunders, R. (2005). Access and Service Use by children with autism spectrum disorders in medicaid managed care. Journal of Autism and Developmental Disorders, 35(1), 3–13.PubMedCrossRef Ruble, L., Heflinger, C., Rnfrew, J., & Saunders, R. (2005). Access and Service Use by children with autism spectrum disorders in medicaid managed care. Journal of Autism and Developmental Disorders, 35(1), 3–13.PubMedCrossRef
go back to reference Senel, H. (2010). Parents’ views and experiences about complementary and alternative medicine treatments for their children with autistic spectrum disorder. Journal of Autism and Developmental Disorders, 40, 494–503.PubMedCrossRef Senel, H. (2010). Parents’ views and experiences about complementary and alternative medicine treatments for their children with autistic spectrum disorder. Journal of Autism and Developmental Disorders, 40, 494–503.PubMedCrossRef
go back to reference Sperry, L., Whaley, K., Shaw, E., & Brame, K. (1999). Services for young children with autism spectrum disorders: Voices of parents and providers. Infant and Young Children, 11(4), 17–33.CrossRef Sperry, L., Whaley, K., Shaw, E., & Brame, K. (1999). Services for young children with autism spectrum disorders: Voices of parents and providers. Infant and Young Children, 11(4), 17–33.CrossRef
go back to reference Starr, E., & Foy, J. (2010). In parents’ voices: The education of children with autism spectrum disorders. Remedial and Special Education, 33(4), 1–10. Starr, E., & Foy, J. (2010). In parents’ voices: The education of children with autism spectrum disorders. Remedial and Special Education, 33(4), 1–10.
go back to reference Starr, E., Foy, J., & Cramer, K. (2001). Parental perceptions of the education of children with pervasive developmental disorders. Education and Training in Mental Retardation and Developmental Disabilities, 36(1), 55–68. Starr, E., Foy, J., & Cramer, K. (2001). Parental perceptions of the education of children with pervasive developmental disorders. Education and Training in Mental Retardation and Developmental Disabilities, 36(1), 55–68.
go back to reference Starr, E., Foy, J., Cramer, K., & Singh, H. (2006). How are schools doing? Parental perceptions of children with autism spectrum disorders, down syndrome, and learning disabilities: A comparative analysis. Education and Training in Mental Retardation and Developmental Disabilities, 41, 315–332. Starr, E., Foy, J., Cramer, K., & Singh, H. (2006). How are schools doing? Parental perceptions of children with autism spectrum disorders, down syndrome, and learning disabilities: A comparative analysis. Education and Training in Mental Retardation and Developmental Disabilities, 41, 315–332.
go back to reference Stoner, J., Bock, S., Thompson, J., Angell, M., Heyl, B., & Crowley, E. (2005). Welcome to our world: Parent perceptions of interactions between parents of young children with ASD and education professionals. Focus on Autism and Other Developmental Disabilities, 20(1), 40–51.CrossRef Stoner, J., Bock, S., Thompson, J., Angell, M., Heyl, B., & Crowley, E. (2005). Welcome to our world: Parent perceptions of interactions between parents of young children with ASD and education professionals. Focus on Autism and Other Developmental Disabilities, 20(1), 40–51.CrossRef
go back to reference Wang, J., Zhou, X., Xia, W., Sun, C., Wu, L., Wang, J., et al. (2012). Parent-reported health care expenditures associated with autism spectrum disorders in Heilongjiang province, China. BMC Health Services Research, 12, 7. Wang, J., Zhou, X., Xia, W., Sun, C., Wu, L., Wang, J., et al. (2012). Parent-reported health care expenditures associated with autism spectrum disorders in Heilongjiang province, China. BMC Health Services Research, 12, 7.
go back to reference Whitaker, P. (2007). Provision for youngsters with autistic spectrum disorder in mainstream schools: What parents say-and what parents want. British Journal of Special Education, 34, 170–178.CrossRef Whitaker, P. (2007). Provision for youngsters with autistic spectrum disorder in mainstream schools: What parents say-and what parents want. British Journal of Special Education, 34, 170–178.CrossRef
go back to reference Wong, H. H. L., & Smith, R. G. (2006). Patterns of complementary and alternative medical therapy use in children diagnosed with autism spectrum disorders. Journal of Autism and Developmental Disorders, 36(7), 901–909.PubMedCrossRef Wong, H. H. L., & Smith, R. G. (2006). Patterns of complementary and alternative medical therapy use in children diagnosed with autism spectrum disorders. Journal of Autism and Developmental Disorders, 36(7), 901–909.PubMedCrossRef
Metagegevens
Titel
Parental Perceptions of Services Provided for Children with Autism in Jordan
Auteurs
Mohammad A. AL Jabery
Diana H. Arabiat
Hatem A. AL Khamra
Iman Amy Betawi
Sinaria Kamil Abdel Jabbar
Publicatiedatum
01-04-2014
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 3/2014
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-012-9703-0