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Quality of Life Research
Gepubliceerd in:

05-01-2025

“I think her life got so much better”: parents’ perceptions of children’s quality of life following treatment of tracheomalacia with aortopexy

Auteurs: Bethany L. Brockbank, Greg S. J. Dewar, Richard J. D. Hewitt, Colin C. R. Butler, Jo Wray

Gepubliceerd in: Quality of Life Research | Uitgave 4/2025

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Abstract

Background

Aortopexy is a procedure to reduce pressure on the trachea in children with severe tracheomalacia. Health-related quality of life (HRQoL) has not been studied in children who have undergone aortopexy; we aimed to explore parents’ perceptions of their child’s HRQoL before and after aortopexy.

Methods

Parents of children < 18 years who underwent aortopexy at a quaternary specialist centre were purposively sampled and invited to participate in a semi-structured interview. Data were analysed using reflective thematic and content analysis.

Results

Eight interviews (23–56 min) were completed with parents whose children were aged 1.9–12.1 years. HRQoL is explored through themes: a challenging diagnosis, lifechanging, and an understanding of limitations. Parents struggled to obtain a diagnosis of tracheomalacia while their child experienced serious symptoms. Aortopexy was seen as life-saving and allowed a return to family life. Airway safety, having their health and achieving a better quality of life were important outcomes of the procedure.

Conclusion

Quality of life following aortopexy was perceived to be greatly improved. Children still struggled in aspects of their life, however families worked within their child’s limitations, appreciating the life-saving nature of the intervention, and accepting the complexities of their child’s comorbidities. Holistic interventions are important for those at risk of poor HRQoL outcomes.
vorige artikel Physical activity, and improvement in health-related quality of life among Australian middle-aged and older adults living with type 2 diabetes mellitus
volgende artikel Post COVID-19 infection and quality of life of healthcare workers at Sahloul University Hospital of Sousse in Tunisia
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Metagegevens
Titel
“I think her life got so much better”: parents’ perceptions of children’s quality of life following treatment of tracheomalacia with aortopexy
Auteurs
Bethany L. Brockbank
Greg S. J. Dewar
Richard J. D. Hewitt
Colin C. R. Butler
Jo Wray
Publicatiedatum
05-01-2025
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 4/2025
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-024-03888-6

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