Quality of Life Research

A qualitative systematic review of the impact of hearing on quality of life

• Open Access
• Review

Nadine Henderson, Sian Hodgson, Brendan Mulhern, Katie Page, Chris Sampson

Quality of life measures for people following stroke: a structured content review

• Review

Catherine Mariam George, Armaghan Dabbagh, Janelle Unger, Folarin Babatunde, Joy C. MacDermid

Systematic review of the needs and health-related quality of life domains relevant to people surviving cancer in Europe

• Open Access
• Review

Clara Amat-Fernandez, Olatz Garin, Ricardo Luer-Aguila, Yolanda Pardo, Renata Briseño, Catalina Lizano-Barrantes, Leslye Rojas-Concha, Melissa S.Y. Thong, Giovanni Apolone, Cinzia Brunelli, Augusto Caraceni, Norbert Couespel, Nanne Bos, Mogens Groenvold, Stein Kaasa, Gennaro Ciliberto, Claudio Lombardo, Ricardo Pietrobon, Gabriella Pravettoni, Aude Sirven, Hugo Vachon, Alexandra Gilbert, Galina Velikova, Montse Ferrer, Massimo Costantini, Madeline Pe, Chiara Marzorati, Antonio Tanzilli, Morten Aagaard Petersen, Aline Machiavelli, Joachim Widder, Helidon Nina, Philip Debruyne, Ivaylo Petrov, Vesna Ramljak, Maria Krini, Tomas Kazda, Helle Pappot, Liina Pääbo, Vahur Valvere, Johanna Mattson, Ann Bredart, Carole Boulec, Mariaalice Borinelli-Franzoi, Ekaterina Kldiashvili, Christian Brandts, Nicole Erickson, Volker Arndt, Olga Balaoura, Horvath Orsolya, Claire Donohoe, Alessandro Rizzo, Andrea Pace, Sandra Lejniece, Audrius Dulskas, Vadim Pogonet, Lonneke van de Poll, Marianne Grønlie Guren, Iwona Ługowska, Maria Litwiniuk, Maria José Bento, Tudor Ciuleanu, Milana Mitrić, Ivica Ratosa, Michal Chovanec, Maria Vieito, Héctor Aguilar, Eva Ruiz, Karin Ahlberg, Eda Tanrikulu Simsek, Mahmut Gumus, Inke Minnée-van Braak, Caitriona Higgins, Laura Pinnavaia, Carina Dantas, Tapani Kalmi, Áurea Martin

The comprehensibility continuum: a novel method for analysing comprehensibility of patient reported outcome measures

• Open Access
• Commentary

Victoria Gale, Philip A. Powell, Jill Carlton

Validation of the FROM-16 in family members of patients receiving advanced therapy medicinal product (ATMP)

• Open Access

Charles D. Brilliant, Andrew Y. Finlay, Sam M. Salek, Rubina Shah, Emily Bacon, Hamish Laing

Content and face validity of preference-based quality of life instruments in indigenous youth experiencing mental health problems: a qualitative study

Thao Thai, Lidia Engel, Sandra Eades, Lena Sanci, Robyn William, Pippa Gregory, Justine Whitby, Cathrine Mihalopoulos

Qualitative evidence on EQ-5D-5L skin irritation and self-confidence bolt-ons in Darier’s disease and Hailey-Hailey disease

• Open Access

Dóra Plázár, Zseraldin Metyovinyi, Márta Medvecz, Fanni Rencz

Exploring the content validity of the EQ-5D-5L and four bolt-ons (skin irritation, self-confidence, sleep, social relationships) in atopic dermatitis and chronic urticaria

• Open Access

Anna-Katrine Sussex, Fanni Rencz, Millie Gaydon, Andrew Lloyd, Katy Gallop

Understanding the impact of early onset colorectal cancer on quality of life: a qualitative analysis of online forum data

• Open Access

Alice Spencer, Christopher Bedding, Emma Nicklin, Hélène Flint, Alexandra Gilbert

Correction: Understanding the impact of early onset colorectal cancer on quality of life: a qualitative analysis of online forum data

• Open Access
• Correction

Alice Spencer, Christopher Bedding, Emma Nicklin, Hélène Flint, Alexandra Gilbert

Living with a new kidney from the perspective of adolescents: A mandala-supported qualitative study

Büşra Nur TEMÜR, Mustafa Volkan DÜZGÜN, Nilgün AKSOY, Ayşegül İŞLER, Elif ÇETİNKAYA

Physical activity, and improvement in health-related quality of life among Australian middle-aged and older adults living with type 2 diabetes mellitus

Addisu Shunu Beyene, Hirbo Shore Roba, Tolassa Wakayo Ushula, Syed Afroz Keramat

“I think her life got so much better”: parents’ perceptions of children’s quality of life following treatment of tracheomalacia with aortopexy

Bethany L. Brockbank, Greg S. J. Dewar, Richard J. D. Hewitt, Colin C. R. Butler, Jo Wray

Post COVID-19 infection and quality of life of healthcare workers at Sahloul University Hospital of Sousse in Tunisia

Amene Fki, Imène Kacem, Chaima Sridi, Farah Chelly, Rania Bouchech, Nabil Ben Gadha, Mohamed Kahloul, Sonia Ksibi

Comparison of patient-reported symptoms with multi-item patient-reported outcome measures of fatigue, anxiety, and depression in the clinical care of women undergoing chemotherapy for early breast cancer

Kirsten A. Nyrop, Allison M. Deal, Coral H. Aman, Hyman B. Muss, Bryce B. Reeve

Health-related quality of life in parents of long-term childhood cancer survivors: a report from the Swiss Childhood Cancer Survivor Study - Parents

• Open Access

Sonja Kälin, Julia Baenziger, Luzius Mader, Erika Harju, Fabienne Gumy-Pause, Felix Niggli, Grit Sommer, Gisela Michel, Katharina Roser

In varietate concordia – cluster analysis of EQ-5D-5L value sets in European Union countries

• Open Access

Vera Pinheiro, Tallys Feldens, Juanita A. Haagsma, João Vasco Santos

Long‑term physical and mental Health-Related Quality of Life in Italian patients post COVID-19 hospitalisation

• Open Access

Marco Viola, Carlotta Sacerdote, Giovannino Ciccone, Edoardo Donarelli, Manolis Kogevinas, Assunta Rasulo, Anna Toscano, Eva Pagano, Rosalba Rosato

Bayesian item response theory to estimate power in clinical trials with patient-reported outcomes as endpoints

Xiaohang Mei, Joseph C. Cappelleri, Jinxiang Hu

Investigating item response theory model performance in the context of evaluating clinical outcome assessments in clinical trials

Nicolai D. Ayasse, Cheryl D. Coon

Meaningful change threshold estimation for the non-small cell lung cancer symptom assessment questionnaire (NSCLC-SAQ): psychometric analysis from a phase 3 trial (LIBRETTO-431)

Nathan Clarke, Gill Worthy, Nalin Payakachat, Adrienne M. Gilligan, Kim Cocks

Clinical cut-offs for hip- and knee arthroplasty outcome - minimal clinically important improvement (MCII) and patient acceptable symptom state (PASS) of patient-reported outcome measures (PROM)

• Open Access

Aksel Paulsen, Ane Djuv, Ingvild Dalen

Clarifying thresholds for defining levels of physical function and pain interference using bookmarking in orthopaedics

• Open Access

Nan E. Rothrock, Anastasiya Drandarov, Aaron J. Kaat, Hannah Mosher, Juliano Prado, Marilyn Heng

Impact of surgery versus follow-up on psychological distress in patients with indeterminate pulmonary nodules: A prospective observational study

Junhan Wu, Weitao Zhuang, Rixin Chen, Haijie Xu, Zijie Li, Zihua Lan, Xin Xia, Zhe He, Shaopeng Li, Cheng Deng, Wei Xu, Qiuling Shi, Yong Tang, Guibin Qiao