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Journal of Autism and Developmental Disorders

Gepubliceerd in:

01-02-2024 | Original Article

Initial Psychometric Properties of the Catalight Family Wellbeing Scale

Auteurs: Lindsey Sneed, Ryan Taylor, Ian Cook, Michelle Befi, Brianna Fitchett, Doreen Samelson, Vincent Bemmel

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 3/2025

Abstract

Purpose

Wellbeing refers to a person’s overall happiness and satisfaction with life. Wellbeing for people with Intellectual and Developmental Disabilities (I/DD) and their families is historically significantly lower compared to the general population. It is important in the context of behavioral health treatment to not only measure the individual who is receiving treatment’s overall wellbeing, but also the wellbeing of the family. The purpose of this study was to understand the initial psychometric properties of the Catalight Family Wellbeing Scale.

Methods

The Catalight Family Wellbeing Scale was developed for families who have a child with I/DD. Caregivers of 3106 families who have a child with a diagnosed I/DD, including autism spectrum disorder, completed the scale as part of their onboarding for behavioral health treatment along with three other questionnaires. The psychometric properties including internal reliability and factor structure were completed as well as initial convergent and divergent validity.

Results

Results of the analyses revealed very strong internal reliability and a three-factor structure. Validity analyses revealed a moderate positive relationship with parental self-efficacy and a moderate negative relationship with parental stress. Additionally, the sample population represents an ethnically diverse group with multiple co-occurring diagnosis in addition to I/DD.

Conclusions

The initial psychometric properties of the Catalight Family Wellbeing Scale are positive and support the use of the scale for families who have a child with I/DD across a diverse sample.

vorige artikel The Association between Threatened Miscarriage and Autism Spectrum Disorder and Attention-Deficit/Hyperactivity Disorder in Offspring by Age 14 Years

volgende artikel The Effect of Family Characteristics on the Functioning of a Child with an Autistic Spectrum Disorder in Bedouin Society in Israel

American Psychological Association (2020, June). Impact on family scale. American Psychological Association. https://www.apa.org/pi/about/publications/caregivers/practice-settings/assessment/tools/family-impact.

Anglim, J., Horwood, S., Smillie, L. D., Marrero, R. J., & Wood, J. K. (2020). Predicting psychological and subjective well-being from personality: A meta-analysis. Psychological Bulletin, 146(4), 279–323. https://doi.org/10.1037/bul0000226.CrossRefPubMed

Baker-Ericzén, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204. https://doi.org/10.2511/rpsd.30.4.194.

Balestro, J. I., Amato, C. A., de la Sugawara, H., Gibello, V., Segeren, I., L., & Fernandes, F. D. M. (2016). Relations between the Perception of Communication Difficulties, stress levels and behavior of children with Autism Spectrum disorders. Psychology, 7(12). https://doi.org/10.4236/psych.2016.712139.

Berry, J. O., & Jones, W. H. (1995). The parental stress scale: Initial psychometric evidence. Journal of Social and Personal Relationships, 12, 463–472.CrossRef

Bozkurt, G., Uysal, G., & Düzkaya, D. S. (2019). Examination of care burden and stress coping styles of parents of children with Autism Spectrum Disorder. Journal of Pediatric Nursing, 47, 142–147. https://doi.org/10.1016/j.pedn.2019.05.005.CrossRefPubMed

Cattell, R. B. (1966). The Scree Test For The Number Of Factors. Multivariate Behavioral Research, 1(2), 245–276. https://doi.org/10.1207/s15327906mbr0102_10.

Cummins, R. A., & Lau, A. L. D. (2005). Personal Wellbeing Index-Intellectual Disability: 3rd Edition. Melbourne: Australian Centre on Quality of Life, Deakin University https://www.acqol.com.au/uploads/pwi-id/pwi-id-english.pdf.

Dardas, L. A., & Ahmad, M. M. (2014). Validation of the World Health Organization’s quality of life questionnaire with parents of children with autistic disorder. Journal of Autism and Developmental Disorders, 44, 2257–2263.CrossRefPubMed

U.S. Department of Health and Human Services (1987). Children With Special Health Care Needs–Campaign 87–Commitment to Family-Centered, Coordinated Care for Children With Special Health Care Needs. Washington, DC.

DuBois, L., Tennety, N., Roiter, S., Sadler, T., Shah, D., Karon, S., Pedersen, J., Nelson-Rodriguez, A., Wafford, Q. E., & Heinemann, A. (2022). Person-centered measures of Home- and Community-Based Services: Identifying approaches to measuring outcomes, services, and supports (p. 2022.12.22.22283875). medRxiv. https://doi.org/10.1101/2022.12.22.22283875.

Eapen, V., Črnčec, R., Walter, A., & Tay, K. P. (2014). Conceptualisation and Development of a quality of life measure for parents of children with Autism Spectrum Disorder. Autism Research and Treatment, 2014, e160783. https://doi.org/10.1155/2014/160783.CrossRef

Factor, R. S., Ollendick, T. H., Cooper, L. D., Dunsmore, J. C., Rea, H. M., & Scarpa, A. (2019). All in the family: A systematic review of the Effect of Caregiver-Administered Autism Spectrum Disorder interventions on Family Functioning and relationships. Clinical Child and Family Psychology Review, 22(4), 433–457. https://doi.org/10.1007/s10567-019-00297-x.CrossRefPubMed

Frazier, T. W., Hyland, A. C., Markowitz, L. A., Speer, L. L., & Diekroger, E. A. (2020). Psychometric evaluation of the revised child and family quality of life questionnaire (CFQL-2). Research in Autism Spectrum Disorders, 70, 101474. https://doi.org/10.1016/j.rasd.2019.101474.CrossRef

International Wellbeing Group (2013). Personal Wellbeing Index-Adults: 5th Edition. Melbourne: Australian Centre on Quality of Life, Deakin University https://www.acqol.com.au/uploads/pwi-a/pwi-a-english.pdf.

Ismail, M. F., Safii, R., Saimon, R., & Rahman, M. M. (2022). Quality of life among Malaysian parents with Autism Spectrum Disorder child: The double ABCX Model Approach. Journal of Autism & Developmental Disorders, 52(1), 113–123. https://doi.org/10.1007/s10803-021-04929-6.CrossRef

Kersh, J., Hedvat, T., Hauser-Cram, P., & Warfield, M. E. (2006). The contribution of marital quality to the well-being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 883–893. https://doi.org/10.1111/j.1365-2788.2006.00906.x.CrossRefPubMed

Khanjani, M., Shahidi, S., Fathabadi, J., Mazaheri, M. A., & Shokri, O. (2014). Factor structure and psychometric properties of the Ryff’s scale of Psychological well-being, short form (18-item) among male and female students. Thoughts and Behavior in Clinical Psychology, 9(32), 27–36.

Kuhlthau, K. A., Bloom, S., Van Cleave, J., Knapp, A. A., Romm, D., Klatka, K., Homer, C. J., Newacheck, P. W., & Perrin, J. M. (2011). Evidence for family-centered care for children with Special Health Care needs: A systematic review. Academic Pediatrics, 11(2), 136–143e8. https://doi.org/10.1016/j.acap.2010.12.014.CrossRefPubMed

Lai, W. W., & Oei, T. P. S. (2014). Coping in parents and caregivers of children with Autism Spectrum disorders (ASD): A review. Review Journal of Autism and Developmental Disorders, 1(3), 207–224. https://doi.org/10.1007/s40489-014-0021-x.CrossRef

Malhotra, S., Khan, W., & Bhatia, M. S. (2012). Quality of life of parents having children with developmental disabilities. Delhi Psychiatry Journal, 15(1), 171–176.

Markowitz, L. A., Reyes, C., Embacher, R. A., Speer, L. L., Roizen, N., & Frazier, T. W. (2016). Development and psychometric evaluation of a Psychosocial Quality of Life Questionnaire for individuals with Autism and Related Developmental disorders. Autism: The International Journal of Research and Practice, 20(7), 832–844. https://doi.org/10.1177/1362361315611382.CrossRefPubMed

Marsack, C. N., & Samuel, P. S. (2017). Mediating effects of Social Support on Quality of Life for parents of adults with autism. Journal of Autism and Developmental Disorders, 47(8), 2378–2389. https://doi.org/10.1007/s10803-017-3157-6.CrossRefPubMed

McAuliffe, T., Cordier, R., Vaz, S., Thomas, Y., & Falkmer, T. (2017). Quality of life, coping styles, stress levels, and Time Use in mothers of children with Autism Spectrum disorders: Comparing single Versus coupled households. Journal of Autism and Developmental Disorders, 47(10), 3189–3203. https://doi.org/10.1007/s10803-017-3240-z.CrossRefPubMed

McConachie, H., Parr, J. R., Glod, M., Hanratty, J., Livingstone, N., Oono, I. P., Robalino, S., Baird, G., Beresford, B., Charman, T., Garland, D., Green, J., Gringras, P., Jones, G., Law, J., Le Couteur, A. S., Macdonald, G., McColl, E. M., Morris, C., & Williams, K. (2015). Systematic review of tools to measure outcomes for young children with autism spectrum disorder. Health Technology Assessment (Winchester England), 19(41), 1–506. https://doi.org/10.3310/hta19410.CrossRefPubMed

McConkey, R. (2020). A brief measure of parental wellbeing for use in evaluations of family-centred interventions for children with Developmental Disabilities. Children, 7(120), 120. https://doi.org/10.3390/children7090120.CrossRefPubMedPubMedCentral

McCubbin Resilience (2016). Measures. Resilience, Adaptation, and Well-Being, 2 Feb. 2016, www.mccubbinresilience.org/measures.html.

McCubbin, H. I., & Patterson, J. (1983). Family Member Well-being Index (FMWB). In H.I. McCubbin, A.I. Thompson, & M.A. McCubbin (1996). Family assessment: Resiliency, coping and adaptation-Inventories for research and practice. (pp. 753–782). Madison: University of Wisconsin System.

McCubbin, M. A., McCubbin, H. I., & Thompson, A. I. (1986). Family Hardiness Index (FHI). In H.I. McCubbin, AI. Thompson, & M.A. McCubbin (1996). Familyasses8ment: Re8iliency, coping and adaptation-Inventorie8 for research and practice. (pp. 239–305). Madison: University of Wisconsin System.

McCubbin, H., Patterson, J., & AND WELL-BEING. (2016a). Family member well-being FMWB. RESILIENCE, ADAPTATION, 2 Feb. 2016, www.mccubbinresilience.org/uploads/5/9/7/9/59799889/fmwb_description_-_english.pdf.

McCubbin, M. A., McCubbin, H. I., & Thompson, A. I. (2016b). Family Hardiness Index FHI. The Resilience, Adaptation and Well-Being Project, 2 Feb. 2016, www.mccubbinresilience.org/uploads/5/9/7/9/59799889/fhi_description_-_english.pdf.

Mello, C., Rivard, M., Terroux, A., & Mercier, C. (2019). Quality of life in families of Young Children with Autism Spectrum Disorder. American Journal on Intellectual and Developmental Disabilities, 124(6), 535–548.CrossRefPubMed

Norlin, D., & Broberg, M. (2013). Parents of children with and without intellectual disability: Couple relationship and Individual Well-Being. Journal of Intellectual Disability Research, 57(6), 552–566.CrossRefPubMed

Padden, C., Concialdi-McGlynn, C., & Lydon, S. (2019). Psychophysiological measures of stress in caregivers of individuals with autism spectrum disorder: A systematic review. Developmental Neurorehabilitation, 22(3), 149–163. https://doi.org/10.1080/17518423.2018.1460769.CrossRefPubMed

Park, J., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., Mannan, H., Wang, M., & Nelson, L. L. (2003). Toward assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research, 47(4–5), 367–384. https://doi.org/10.1046/j.1365-2788.2003.00497.x.CrossRefPubMed

Pozo, P., Sarriá, E., & Brioso, A. (2014). Family Quality of Life and Psychological Well-being in parents of children with Autism Spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research, 58(5), 442–458.CrossRefPubMed

Rose, T., Joe, S., Williams, A., Harris, R., Betz, G., & Stewart-Brown, S. (2017). Measuring Mental Wellbeing among adolescents: A systematic review of instruments. Journal of Child and Family Studies, 26(9), 2349–2362. https://doi.org/10.1007/s10826-017-0754-0.CrossRef

Schiltz, H. K., McVey, A. J., Magnus, B., Dolan, B. K., Willar, K. S., Pleiss, S., Karst, J., Carson, A. M., Caiozzo, C., Vogt, E., & Van Hecke, A. V. (2018). Examining the Links between challenging behaviors in Youth with ASD and parental stress, Mental Health, and involvement: Applying an adaptation of the family stress model to families of youth with ASD. Journal of Autism and Developmental Disorders, 48(4), 1169–1180. https://doi.org/10.1007/s10803-017-3446-0.CrossRefPubMedPubMedCentral

Singer G. H. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal of Mental Retardation: AJMR, 111(3), 155–169. https://doi.org/10.1352/0895-8017(2006)111[155:MOCSOD]2.0.CO;2.

Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of life Research, 13, 299–310.CrossRefPubMed

Smart, L. K. (2016). Parenting Self-Efficacy in Parents of Children with Autism Spectrum Disorders. 122.

Sneed, L., & Samelson, D. (2022). Effectiveness of parent-led Applied Behavior analysis at improving outcomes for parents of autistic children. Journal of Social Behavioral and Health Sciences, 16(1). https://doi.org/10.5590/JSBHS.2022.16.1.12.

Sonido, M. T., Hwang, Y. I., Srasuebkul, P., Trollor, J. N., & Arnold, S. R. C. (2022). Predictors of the quality of life of Informal carers of adults on the Autism Spectrum. Journal of Autism & Developmental Disorders, 52(7), 2997–3014. https://doi.org/10.1007/s10803-021-05178-3.CrossRef

Sparrow, S. S., Cicchetti, D. V., & Saulnier, C. A. (2016). Vineland Adaptive Behavior Scales, Third Edition (Vineland-3) Pearson. https://doi.org/10.1177/0829573517733845.

Stein, R. E. K., & Jessop, D. J. (2003). The impact on family scale revisited: Further psychometric data. Developmental and Behavioral Pediatrics, 24, 9–16. https://doi.org/10.1097/00004703-200302000-00004.CrossRef

Thurstone, L. L. (1947). Multiple-factor analysis: A development and expansion of the vectors of mind. Chicago: University of Chicago Press.

Warner, R. (2013). Applied Statistics: From bivariate through multivariate techniques (2nd ed.). SAGE Publications, Inc.

Watson, S. L., Stine, F., Tumin, D., & Stiles, K. M. (2021). Employment and well-being among caregivers of children with autism spectrum disorder. Children’s Health Care, 50(1), 16–27. https://doi.org/10.1080/02739615.2020.1810576.CrossRef

World Health Organization. (n.d.). WHOQOL - measuring quality of life| The World Health Organization. World Health Organization. https://www.who.int/tools/whoqol.

World Health Organization. (2005). Promoting mental health: Concepts, emerging evidence, practice: A report of the World Health Organization, Department of Mental Health and Substance Abuse in collaboration with the Victorian Health Promotion Foundation and the University of Melbourne. World Health Organization. https://apps.who.int/iris/handle/10665/43286.

Titel: Initial Psychometric Properties of the Catalight Family Wellbeing Scale
Auteurs: Lindsey Sneed
Ryan Taylor
Ian Cook
Michelle Befi
Brianna Fitchett
Doreen Samelson
Vincent Bemmel
Publicatiedatum: 01-02-2024
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 3/2025
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-024-06254-0

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Initial Psychometric Properties of the Catalight Family Wellbeing Scale

Abstract

Purpose

Methods

Results

Conclusions

Andere artikelen Uitgave 3/2025

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Abstract

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