Quality of Life Research

A systematic review of utility values in children with cerebral palsy

• Review

Utsana Tonmukayakul, Long Khanh-Dao Le, Shalika Bohingamu Mudiyanselage, Lidia Engel, Jessica Bucholc, Brendan Mulhern, Rob Carter, Cathrine Mihalopoulos

Effects of caregiver-involved interventions on the quality of life of children and adolescents with chronic conditions and their caregivers: a systematic review and meta-analysis

• Review

Nan Sheng, Jiali Ma, Wenwen Ding, Ying Zhang

Changes and determinants of health-related quality of life among people newly diagnosed with HIV in China: a 1-year follow-up study

• Open Access

Yunxiang Huang, Dan Luo, Xi Chen, Dexing Zhang, Min Wang, Yangyang Qiu, Ying Liu, Bihua Peng, Lu Niu, Shuiyuan Xiao

Quality of life of persons living with HIV and congruence with surrogate decision-makers

Katherine B. Curtin, Yao I. Cheng, Jichuan Wang, Rachel K. Scott, Leah Squires, Debra A. Benator, Maureen E. Lyon

Psychosocial predictors of quality of life among South Africa adolescents receiving antiretroviral therapy

A. Kagee, B. Coetzee, S. Du Toit, M. E. Loades

The prognostic value of health-related quality of life in patients with Chagas heart disease

Henrique Silveira Costa, Márcia Maria Oliveira Lima, Pedro Henrique Scheidt Figueiredo, Ana Thereza Chaves, Maria Carmo Pereira Nunes, Manoel Otávio da Costa Rocha

The impact of education on knowledge, adherence and quality of life among patients on haemodialysis

Victoria Alikari, Maria Tsironi, Vasiliki Matziou, Foteini Tzavella, John Stathoulis, Fotoula Babatsikou, Evangelos Fradelos, Sofia Zyga

Association between preoperative anaemia and blood transfusion with long-term functional and quality of life outcomes amongst patients undergoing primary total knee arthroplasty in Singapore: a single-centre retrospective study

Hairil Rizal Abdullah, Niresh Ranjakunalan, William Yeo, Mann Hong Tan, Ruban Poopalalingam, Yilin Eileen Sim

Primary dysmenorrhea with and without premenstrual syndrome: variation in quality of life over menstrual phases

Farideh Quick, Sakineh Mohammad-Alizadeh-Charandabi, Mojgan Mirghafourvand

Quality-adjusted survival of nivolumab plus ipilimumab or nivolumab alone versus ipilimumab alone among treatment-naive patients with advanced melanoma: a quality-adjusted time without symptoms or toxicity (Q-TWiST) analysis

David F. McDermott, Ruchit Shah, Komal Gupte-Singh, Javier Sabater, Linlin Luo, Marc Botteman, Sumati Rao, Meredith M. Regan, Michael Atkins

Health-related quality of life in people with advanced dementia: a comparison of EQ-5D-5L and QUALID instruments

Elizaveta Sopina, Lynn Chenoweth, Tim Luckett, Meera Agar, Georgina M. Luscombe, Patricia M. Davidson, Constance D. Pond, Jane Phillips, Stephen Goodall

Mapping the Alzheimer’s Disease Cooperative Study-Activities of Daily Living Inventory to the Health Utility Index Mark III

Yin Bun Cheung, Hui Xing Tan, Vivian Wei Wang, Nagaendran Kandiah, Nan Luo, Gerald C. H. Koh, Hwee Lin Wee

Validity of the EQ-5D-5L and EQ-5D-3L in patients with Crohn’s disease

Fanni Rencz, Peter L. Lakatos, László Gulácsi, Valentin Brodszky, Zsuzsanna Kürti, Szilvia Lovas, János Banai, László Herszényi, Tamás Cserni, Tamás Molnár, Márta Péntek, Károly Palatka

Psychometric performance assessment of Malay and Malaysian English version of EQ-5D-5L in the Malaysian population

Asrul Akmal Shafie, Annushiah Vasan Thakumar, Ching Jou Lim, Nan Luo

Scoring the Child Health Utility 9D instrument: estimation of a Chinese child and adolescent-specific tariff

Gang Chen, Fei Xu, Elisabeth Huynh, Zhiyong Wang, Katherine Stevens, Julie Ratcliffe

Mapping the Positive and Negative Syndrome Scale scores to EQ-5D-5L and SF-6D utility scores in patients with schizophrenia

• Open Access

Edimansyah Abdin, Siow Ann Chong, Esmond Seow, Swapna Verma, Kelvin Bryan Tan, Mythily Subramaniam

Towards standardized patient reported physical function outcome reporting: linking ten commonly used questionnaires to a common metric

• Open Access

M. A. H. Oude Voshaar, H. E. Vonkeman, D. Courvoisier, A. Finckh, L. Gossec, Y. Y. Leung, K. Michaud, G. Pinheiro, E. Soriano, N. Wulfraat, A. Zink, M. A. F. J. van de Laar

Adapting summary scores for the PROMIS-29 v2.0 for use among older adults with multiple chronic conditions

Wenjing Huang, Adam J. Rose, Elizabeth Bayliss, Lesley Baseman, Emily Butcher, Rosa-Elena Garcia, Maria Orlando Edelen

Validation of two PROMIS item banks for measuring social participation in the Dutch general population

• Open Access

C. B. Terwee, M. H. P. Crins, M. Boers, H. C. W. de Vet, L. D. Roorda

The 88-item Multiple Sclerosis Spasticity Scale: a Rasch validation of the Italian version and suggestions for refinement of the original scale

Leonardo Pellicciari, Marcella Ottonello, Andrea Giordano, Caterina Albensi, Franco Franchignoni

Factor structure and measurement invariance of the Subjective Vitality Scale: evidence from Chinese adolescents in Hong Kong

Jing-Dong Liu, Pak-Kwong Chung

Psychometric properties of a modified version of the Weiss Functional Impairment Rating Scale-Parent Report (WFIRS-P) in a clinical sample of children with aggressive behavior

Teresa Kernder, Manfred Doepfner, Christina Dose, Anja Goertz-Dorten

Development and content validity of a hemodialysis symptom patient-reported outcome measure

Jennifer E. Flythe, Adeline Dorough, Julia H. Narendra, Rebecca L. Wingard, Lorien S. Dalrymple, Darren A. DeWalt

Confirmatory factor analysis of the Minnesota living with heart failure questionnaire among patients following open heart surgery for valve dysfunction

Scott D. Barnett, Eric L. Sarin, Linda Henry, Linda Halpin, Grace Pritchard, Alan M. Speir

Normative values for the distress thermometer (DT) and the emotion thermometers (ET), derived from a German general population sample

• Brief Communication

Andreas Hinz, Alex J. Mitchell, Csaba L. Dégi, Anja Mehnert-Theuerkauf