Quality of Life Research

Patient-reported outcome and experience domains for diagnostic excellence: a scoping review to inform future measure development

• Open Access

Vadim Dukhanin, Mary Jo Gamper, Kelly T. Gleason, Kathryn M. McDonald

A systematic review of health state utility values for older people with acute myeloid leukaemia

• Open Access
• Review

Elise Button, Hannah Carter, Nicole C. Gavin, Thomas W. LeBlanc, Nikki McCaffrey

A systematic review of quality of life (QoL) studies using the CASP scale in older adults

• Review

Gabriela L. Frias-Goytia, Cristina Lojo-Seoane, Sabela C. Mallo, Ana Nieto-Vieites, Onésimo Juncos-Rabadán, Arturo X. Pereiro

COSMIN guideline for systematic reviews of patient-reported outcome measures version 2.0

• Open Access

Lidwine B. Mokkink, Ellen B.M. Elsman, Caroline B. Terwee

A framework for best practices in clinical outcome assessment (COA) concept mapping: a case study

• Open Access

Meaghan O’Connor, Lynne Broderick, Miranda Lauher-Charest, Laura Tesler Waldman, Kristi Jackson, Mark Kosinski, Michelle Carty

Response processes for patients providing quantitative self-report data: a qualitative study

• Open Access

Øyvind Grindheim, Andrew McAleavey, Valentina Iversen, Christian Moltu, Kristin Tømmervik, Hege Govasmark, Heidi Brattland

Effect of present state bias on minimal important change estimates: a simulation study

• Open Access

Berend Terluin, Piper Fromy, Andrew Trigg, Caroline B. Terwee, Jakob B. Bjorner

Interdisciplinary provider visits attenuate relationship between patient concerns and distress in older adults with cancer

Kelly M. McConnell, Alexandra K. Zaleta, Rebecca Saracino, Melissa Miller

Using a measurement type-independent metric to compare patterns of determinants between patient-reported versus performance-based physical function in hemodialysis patients

• Open Access

Gregor Liegl, Felix H. Fischer, Bernard Canaud, Mark Woodward, Claudia Barth, Andrew Davenport, Marietta Török, Giovanni F. M. Strippoli, Jörgen Hegbrant, Krister Cromm, Michiel L. Bots, Peter J. Blankestijn, Kathrin I. Fischer, Matthias Rose

Measurement invariance of the PROMIS emotional distress and subjective well-being domains among autistic and General Population adolescents

• Open Access

Elizabeth A. Kaplan-Kahn, Rachel M. Benecke, Whitney Guthrie, Benjamin E. Yerys, Laura Graham Holmes, Judith S. Miller

Using a modified Delphi procedure to select a PRO-CTCAE-based subset for patient-reported symptomatic toxicity monitoring in rectal cancer patients

• Open Access

Yvonne M. Geurts, Femke Peters, Esther Feldman, Jeanine Roodhart, Milan Richir, Jan Willem T. Dekker, Geerard Beets, Jeltsje S. Cnossen, Patricia Bottenberg, Martijn Intven, Marcel Verheij, Kelly M. de Ligt, Iris Walraven

Symptom burden and quality of life among patient and family caregiver dyads in advanced cancer

Katrina R. Ellis, Allison Furgal, Feyisayo Wayas, Alexis Contreras, Carly Jones, Sierra Perez, Dolapo Raji, Madeline Smith, Charlotte Vincent, Lixin Song, Laurel Northouse, Aisha T. Langford

A short scale to measure health-related quality of life after traumatic brain injury in children and adolescents (QOLIBRI-OS-KID/ADO): psychometric properties and German reference values

• Open Access

Marina Zeldovich, Leonie Krol, Inga K. Koerte, Katrin Cunitz, Matthias Kieslich, Marlene Henrich, Knut Brockmann, Anna Buchheim, Michael Lendt, Christian Auer, Axel Neu, Joenna Driemeyer, Ulrike Wartemann, Claudius Thomé, Daniel Pinggera, Steffen Berweck, Michaela V. Bonfert, Joachim Suss, Holger Muehlan, Nicole von Steinbuechel

Neuropsychological and psychiatric outcomes among community-dwelling young Chinese older adults affected by falls in the past year with and without vision impairment

Xia Cao, Hui Chen, Jiansong Zhou

Overall side effect assessment of oxaliplatin toxicity in rectal cancer patients in NRG oncology/NSABP R04

• Open Access

John Devin Peipert, Jessica Roydhouse, Mourad Tighiouart, Norah Lynn Henry, Sungjin Kim, Ron D. Hays, Andre Rogatko, Greg Yothers, Patricia A. Ganz

Sleep quality in cancer patients: a common metric for several instruments measuring sleep quality

• Open Access

Michael Friedrich, Thomas Schulte, Merle Malburg, Andreas Hinz

Health-related quality of life in psychiatric outpatients: a cross-sectional study of associations with symptoms, diagnoses, and employment status

• Open Access

Audun Havnen, Martin Schevik Lindberg, Jakob Lundqvist, Martin Brattmyr, Odin Hjemdal, Stian Solem

The performance relationship between the EQ-5D-5L composite “Anxiety/Depression” dimension and anxiety and depression symptoms in a large, general population sample

• Open Access

Emily Stella Scott, Erica I. Lubetkin, Mathieu F. Janssen, John N. Yfantopolous, Gouke J. Bonsel, Juanita A. Haagsma

Living with faecal incontinence: a qualitative investigation of patient experiences and preferred outcomes through semi-structured interviews

• Open Access

S. L. Assmann, D. Keszthelyi, S. O. Breukink, M. L. Kimman

Association between stigma and quality of life among chronic refractory wounds patients and informal caregivers: an actor-partner interdependence model analysis

Ming Cheng, Chenya Zhu, Jiamin Meng, Chenxi Pu, Guoying Chen, Huan Liu

Life's Essential 8 and its association with osteoarthritis and disability: a cross-sectional study based on the NHANES 2005–2018 database

Mi Chen, Yuebai Chen, Chao Li

The impact of demographic change on value set validity and obsolescence

• Open Access

Marcel F. Jonker

How does the subjective well-being of Australian adults with a congenital corpus callosum disorder compare with that of the general Australian population?

• Open Access

Maree Maxfield, Keith McVilly, Alexandra Devine, Christian Davey, Helen Jordan

Correction: Development of algorithms for estimating the Child Health Utility 9D from Caregiver Priorities and Child Health Index of Life with Disabilities

• Open Access
• Correction

Utsana Tonmukayakul, Kate Willoughby, Cathrine Mihalopoulos, Dinah Reddihough, Brendan Mulhern, Rob Carter, Suzanne Robinson, Gang Chen