Quality of Life Research

New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system)

N. E. Carlozzi, N. R. Downing, M. K. McCormack, S. G. Schilling, J. S. Perlmutter, E. A. Hahn, J. -S. Lai, S. Frank, K. A. Quaid, J. S. Paulsen, D. Cella, S. M. Goodnight, J. A. Miner, M. A. Nance

HDQLIFE: the development of two new computer adaptive tests for use in Huntington disease, Speech Difficulties, and Swallowing Difficulties

N. E. Carlozzi, S. G. Schilling, J.-S. Lai, J. S. Perlmutter, M. A. Nance, J. F. Waljee, J. A. Miner, S. K. Barton, S. M. Goodnight, P. Dayalu

The development of a new computer adaptive test to evaluate chorea in Huntington disease: HDQLIFE Chorea

N. E. Carlozzi, N. R. Downing, S. G. Schilling, J.-S. Lai, S. M. Goodnight, J. A. Miner, S. A. Frank

HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD)

N. E. Carlozzi, S. G. Schilling, J.-S. Lai, J. S. Paulsen, E. A. Hahn, J. S. Perlmutter, C. A. Ross, N. R. Downing, A. L. Kratz, M. K. McCormack, M. A. Nance, K. A. Quaid, J. C. Stout, R. C. Gershon, R. E. Ready, J. A. Miner, S. K. Barton, S. L. Perlman, S. M. Rao, S. Frank, I. Shoulson, H. Marin, M. D. Geschwind, P. Dayalu, S. M. Goodnight, D. Cella

The patient-reported outcome content of international ovarian cancer randomised controlled trial protocols

• Review

Rebecca Mercieca-Bebber, Michael Friedlander, Peey-Sei Kok, Melanie Calvert, Derek Kyte, Martin Stockler, Madeleine T. King

Assessing health-related quality of life in patients with breast cancer: a systematic and standardized comparison of available instruments using the EMPRO tool

Stefano Maratia, Sergio Cedillo, Javier Rejas

Health state descriptions, valuations and individuals’ capacity to walk: a comparative evaluation of preference-based instruments in the context of spinal cord injury

David G. T. Whitehurst, Nicole Mittmann, Vanessa K. Noonan, Marcel F. Dvorak, Stirling Bryan

Question order sensitivity of subjective well-being measures: focus on life satisfaction, self-rated health, and subjective life expectancy in survey instruments

Sunghee Lee, Colleen McClain, Noah Webster, Saram Han

The meaning of vaguely quantified frequency response options on a quality of life scale depends on respondents’ medical status and age

Stefan Schneider, Arthur A. Stone

Comparability of the Patient-Reported Outcomes Measurement Information System Pediatric short form symptom measures across culture: examination between Chinese and American children with cancer

Yanyan Liu, Changrong Yuan, Jichuan Wang, Jeanne Geiger Brown, Fen Zhou, Xiufang Zhao, Min Shen, Pamela S. Hinds

Minimal clinically important differences in the EORTC QLQ-BM22 and EORTC QLQ-C15-PAL modules in patients with bone metastases undergoing palliative radiotherapy

Srinivas Raman, Keyue Ding, Edward Chow, Ralph M. Meyer, Abdenour Nabid, Pierre Chabot, Genevieve Coulombe, Shahida Ahmed, Joda Kuk, A. Rashid Dar, Aamer Mahmud, Alysa Fairchild, Carolyn F. Wilson, Jackson S. Y. Wu, Kristopher Dennis, Carlo DeAngelis, Rebecca K. S. Wong, Liting Zhu, Michael Brundage

Refined comorbidity index based on dimensionality of comorbidity for use in studies of health-related quality of life

Huang-Tz Ou, Chung-Ying Lin, Steven R. Erickson, Rajesh Balkrishnan

Testing the measurement invariance of the University of Washington Self-Efficacy Scale short form across four diagnostic subgroups

• Brief Communication

Hyewon Chung, Jiseon Kim, Ryoungsun Park, Alyssa M. Bamer, Fraser D. Bocell, Dagmar Amtmann

Rasch analysis of the Personal Wellbeing Index

• Brief Communication

RoseAnne Misajon, Julie Pallant, Ana-Maria Bliuc

The Swedish SCOPA-SLEEP for assessment of sleep disorders in Parkinson’s disease and healthy controls

• Brief Communication

Peter Hagell, Albert Westergren, Shorena Janelidze, Oskar Hansson

Predictors of health-related quality of life in people with a complex chronic disease including multimorbidity: a longitudinal cohort study

Zephanie Tyack, Kerrie-anne Frakes, Adrian Barnett, Petrea Cornwell, Suzanne Kuys, Steven McPhail

Changes in well-being after myocardial infarction: Does coping matter?

• Open Access

Aleksandra Kroemeke

Eating disorder features and quality of life: Does gender matter?

Allison F. Wagner, Emily C. Stefano, David C. Cicero, Janet D. Latner, Jonathan M. Mond

Assessing long-term QALYs gain from averting and reversing overweight and obesity in childhood

Win Techakehakij

The relative impact of chronic conditions and multimorbidity on health-related quality of life in Ontario long-stay home care clients

Luke Mondor, Colleen J. Maxwell, Susan E. Bronskill, Andrea Gruneir, Walter P. Wodchis

Comprehending the impact of low vision on the lives of children and adolescents: a qualitative approach

• Open Access

Linda Rainey, Ellen Bernadette Maria Elsman, Ruth Marie Antoinette van Nispen, Lisette Michelle van Leeuwen, Gerardus Hermanus Maria Bartholomeus van Rens

Skin toxicity and quality of life during treatment with panitumumab for RAS wild-type metastatic colorectal carcinoma: results from three randomised clinical trials

• Open Access

Reija Koukakis, Francesca Gatta, Guy Hechmati, Salvatore Siena

The relationships of posttraumatic stress disorder and depression symptoms with health-related quality of life and the role of social support among Veterans

Janelle M. Painter, Kristen Gray, Meghan M. McGinn, Sheeva Mostoufi, Katherine D. Hoerster

Change in health-related quality of life over 1 month in cancer patients with high initial levels of symptoms and problems

• Brief Communication

Charlotte Lund Rasmussen, Anna Thit Johnsen, Morten Aagaard Petersen, Mogens Groenvold

Association of physical fitness with health-related quality of life in early postmenopause

• Open Access
• Brief Communication

N. Moratalla-Cecilia, A. Soriano-Maldonado, P. Ruiz-Cabello, M. M. Fernández, E. Gregorio-Arenas, P. Aranda, V. A. Aparicio

Erratum to: QLU-C10D: a health state classification system for a multi-attribute utility measure based on the EORTC QLQ-C30

• Erratum

M. T. King, D. S. J. Costa, N. K. Aaronson, J. E. Brazier, D. F. Cella, P. M. Fayers, P. Grimison, M. Janda, G. Kemmler, R. Norman, A. S. Pickard, D. Rowen, G. Velikova, T. A. Young, R. Viney