Quality of Life Research

Health-related quality of life in adults with tetralogy of Fallot repair: a systematic review and meta-analysis

• Review

Mahim Malik, Zaiba Shafik Dawood, Mahin Janjua, Sardar Shahmir Babar Chauhan, Laila Akbar Ladak

Correction to: Health-related quality of life in adults with tetralogy of Fallot repair: a systematic review and meta-analysis

• Correction

Mahim Malik, Zaiba Shafik Dawood, Mahin Janjua, Sardar Shahmir Babar Chauhan, Laila Akbar Ladak

Minimal important change (MIC): a conceptual clarification and systematic review of MIC estimates of PROMIS measures

• Open Access
• Review

Caroline B. Terwee, John Devin Peipert, Robert Chapman, Jin-Shei Lai, Berend Terluin, David Cella, Pip Griffiths, Lidwine B. Mokkink

Triangulation of multiple meaningful change thresholds for patient-reported outcome scores

• Review

Andrew Trigg, Pip Griffiths

Between-group minimally important change versus individual treatment responders

• Commentary

Ron D. Hays, John Devin Peipert

Assessing baseline dependency of anchor-based minimal important change (MIC): don’t stratify on the baseline score!

• Open Access

Berend Terluin, Ewa M. Roos, Caroline B. Terwee, Jonas B. Thorlund, Lina H. Ingelsrud

Quality of life and occupational performance of children with cancer in the era of the COVID-19 pandemic in terms of rehabilitation

Gözde Önal, Güleser Güney, Meral Huri

The impact of lockdown during the COVID-19 pandemic on mental and social health of children and adolescents

• Open Access

Michiel A. J. Luijten, Maud M. van Muilekom, Lorynn Teela, Tinca J. C. Polderman, Caroline B. Terwee, Josjan Zijlmans, Leonie Klaufus, Arne Popma, Kim J. Oostrom, Hedy A. van Oers, Lotte Haverman

Quality of life of COVID-19 critically ill survivors after ICU discharge: 90 days follow-up

Lorenzo Gamberini, Carlo Alberto Mazzoli, Harri Sintonen, Davide Colombo, Gaetano Scaramuzzo, Davide Allegri, Tommaso Tonetti, Gianluca Zani, Chiara Capozzi, Emanuela Giampalma, Vanni Agnoletti, Filippo Becherucci, Elisabetta Bertellini, Andrea Castelli, Iacopo Cappellini, Irene Cavalli, Federico Crimaldi, Federica Damiani, Maurizio Fusari, Giovanni Gordini, Cristiana Laici, Maria Concetta Lanza, Mirco Leo, Andrea Marudi, Giuseppe Nardi, Irene Ottaviani, Raffaella Papa, Antonella Potalivo, Vito Marco Ranieri, Emanuele Russo, Stefania Taddei, Carlo Alberto Volta, Savino Spadaro, Marco Tartaglione, Valentina Chiarini, Virginia Buldini, Carlo Coniglio, Federico Moro, Clara Barbalace, Mario Citino, Nicola Cilloni, Lorenzo Giuntoli, Angela Bellocchio, Emanuele Matteo, Giacinto Pizzilli, Antonio Siniscalchi, Chiara Tartivita, Francesco Matteo, Annalisa Marchio, Igor Bacchilega, Laura Bernabé, Sonia Guarino, Elena Mosconi, Luca Bissoni, Lorenzo Viola, Emiliano Gamberini, Tommaso Meconi, Vittorio Pavoni, Aline Pagni, Patrizia Pompa Cleta, Marco Cavagnino, Anna Malfatto, Angelina Adduci, Silvia Pareschi, Gabriele Melegari, Jessica Maccieri, Elisa Marinangeli, Fabrizio Racca, Marco Verri, Giulia Falò, Elisabetta Marangoni, Francesco Boni, Giulia Felloni, Federico Domenico Baccarini, Marina Terzitta, Stefano Maitan, Maddalena Parise, Bernardo Bugiani, Francesca Masoni

Assessing hospitalized patients’ quality of life from external indices: the perspectives of lay people and health professionals

Maria Teresa Muñoz Sastre, Sylvie Castanié, Paul Clay Sorum, Etienne Mullet

Health-related quality of life in elderly, multimorbid individuals with and without depression and/or mild cognitive impairment using a telemonitoring application

• Open Access

Caroline Lang, Martin Roessler, Jochen Schmitt, Antje Bergmann, Vjera Holthoff-Detto

Health-related quality of life outcomes and influencing factors in patients with unruptured intracranial aneurysms after endovascular treatment

Xiao-Dong Zhai, Yong-Jie Ma, Jia-Xing Yu, Chun-Xiu Wang, Jie-Wen Geng, Si-Shi Xiang, Jun Wang, Xin Guan, Gui-Lin Li, Chuan He, Peng Hu, Hong-Qi Zhang

Health-related quality of life in patients with autoimmune hepatitis

• Open Access

Maurice Michel, Francesca Spinelli, Annette Grambihler, Christian Labenz, Michael Nagel, Leonard Kaps, Yvonne Huber, Peter R. Galle, Marcus-Alexander Wörns, Jörn M. Schattenberg

Measuring capability wellbeing in adults at different stages of life for use in economic evaluation of health and care interventions: a qualitative investigation in people requiring kidney care

• Open Access

Paul Mark Mitchell, Samantha Husbands, Sabina Sanghera, Fergus John Caskey, Jemima Scott, Joanna Coast

The effect of functioning on Quality of Life Inventory-Disability measured quality of life is not mediated or moderated by parental psychological distress

A. J. O. Whitehouse, P. Jacoby, D. Reddihough, H. Leonard, K. Williams, Jenny Downs

Could the EQ-5D-3L predict all-cause mortality in older Chinese? Evidence from a 5-year longitudinal study in eastern China

Chen-Wei Pan, Rui-Jie Liu, Xue-Jiao Yang, Qing-Hua Ma, Yong Xu, Nan Luo, Pei Wang

Australian adolescent population norms for the child health utility index 9D—results from the young minds matter survey

Long Khanh-Dao Le, Scott Richards-Jones, Mary Lou Chatterton, Lidia Engel, David Lawrence, Chris Stevenson, Genevieve Pepin, Julie Ratcliffe, Michael Sawyer, Cathrine Mihalopoulos

Health-related quality of life after first-ever acute ischemic stroke: associations with cardiovascular health metrics

Rui She, Zhongrui Yan, Yanlei Hao, Zuoji Zhang, Yifeng Du, Yajun Liang, Davide L. Vetrano, Joost Dekker, Bo Bai, Joseph T. F. Lau, Chengxuan Qiu

Mapping the Memorial Anxiety Scale for Prostate Cancer to the SF-6D

Daniel O. Erim, Antonia V. Bennett, Bradley N. Gaynes, Ram Sankar Basak, Deborah Usinger, Ronald C. Chen

An item analysis according to the Rasch model of the German 12-item WHO Disability Assessment Schedule (WHODAS 2.0)

• Open Access

Lusine Vaganian, Sonja Bussmann, Maren Boecker, Michael Kusch, Hildegard Labouvie, Alexander L. Gerlach, Jan C. Cwik

Support for the higher-order factor structure of the WHODAS 2.0 self-report version in a Dutch outpatient psychiatric setting

• Open Access

Guido L. Williams, Edwin de Beurs, Philip Spinhoven, Gerard Flens, Muirne C. S. Paap

Evaluating the content of a patient-reported outcome measure for people with multimorbidity: a Delphi consensus

Maxime Sasseville, Maud-Christine Chouinard, Martin Fortin

Test–retest reliability of the EQ-5D-5L and the reworded QOLIBRI-OS in the general population of Italy, the Netherlands, and the United Kingdom

• Open Access

Di Long, Suzanne Polinder, Gouke J. Bonsel, Juanita A. Haagsma

Validity, responsiveness and minimal important change of the EQ-5D-5L in patients after rotator cuff repair, shoulder arthroplasty or thumb carpometacarpal arthroplasty

• Open Access

Miriam Marks, Cécile Grobet, Laurent Audigé

FABry Disease Patient-Reported Outcome-GastroIntestinal (FABPRO-GI): A new Fabry disease-specific gastrointestinal outcomes instrument

• Open Access

Alan L. Shields, Roger E. Lamoureux, Fiona Taylor, Jay A. Barth, Andrew E. Mulberg, Vivian Kessler, Nina Skuban

Estimating the minimum important difference in the DEMQOL instrument in people with dementia

• Open Access

Ellen C. Lee, Jessica Wright, Stephen J. Walters, Cindy L. Cooper, Gail A. Mountain