Quality of Life Research

Introduction to special section on patient-reported outcomes in nonstandard settings

• Editorial

Carolyn E. Schwartz, Dennis A. Revicki

Ambulatory and diary methods can facilitate the measurement of patient-reported outcomes

Stefan Schneider, Arthur A. Stone

Advantages and psychometric validation of proximal intensive assessments of patient-reported outcomes collected in daily life

• Special Section: PROs in Non-Standard Settings (by invitation only)

Eve B. Carlson, Nigel P. Field, Josef I. Ruzek, Richard A. Bryant, Constance J. Dalenberg, Terrence M. Keane, David A. Spain

Use of weekly assessment data to enhance evaluation of a subjective wellbeing intervention

• Special Section: PROs in Non-Standard Settings (by invitation only)

Lucia Colla, Matthew Fuller-Tyszkiewicz, Adrian J. Tomyn, Ben Richardson, Justin D. Tomyn

AmbuFlex: tele-patient-reported outcomes (telePRO) as the basis for follow-up in chronic and malignant diseases

• Open Access
• Special Section: PROs in Non-Standard Settings (by invitation only)

Liv Marit Valen Schougaard, Louise Pape Larsen, Anne Jessen, Per Sidenius, Liv Dorflinger, Annette de Thurah, Niels Henrik Hjollund

Evaluation of pedometry as a patient-centered outcome in patients undergoing hematopoietic cell transplant (HCT): a comparison of pedometry and patient reports of symptoms, health, and quality of life

• Special Section: PROs in Non-Standard Settings (by invitation only)

Antonia V. Bennett, Bryce B. Reeve, Ethan M. Basch, Sandra A. Mitchell, Mathew Meeneghan, Claudio L. Battaglini, Abbie E. Smith-Ryan, Brett Phillips, Thomas C. Shea, William A. Wood

Symptom clusters in women with breast cancer: an analysis of data from social media and a research study

• Special Section: PROs in Non-Standard Settings (by invitation only)

Sarah A. Marshall, Christopher C. Yang, Qing Ping, Mengnan Zhao, Nancy E. Avis, Edward H. Ip

Mode of administration does not cause bias in patient-reported outcome results: a meta-analysis

• Special Section: PROs in Non-Standard Settings (by invitation only)

Claudia Rutherford, Daniel Costa, Rebecca Mercieca-Bebber, Holly Rice, Liam Gabb, Madeleine King

Evaluation of point-of-care PRO assessment in clinic settings: integration, parallel-forms reliability, and patient acceptability of electronic QOL measures during clinic visits

• Special Section: PROs in Non-Standard Settings (by invitation only)

Pranav Sharma, Rodney L. Dunn, John T. Wei, James E. Montie, Scott M. Gilbert

Implementation of the Kids-CAT in clinical settings: a newly developed computer-adaptive test to facilitate the assessment of patient-reported outcomes of children and adolescents in clinical practice in Germany

• Special Section: PROs in Non-Standard Settings (by invitation only)

D. Barthel, K. I. Fischer, S. Nolte, C. Otto, A. -K. Meyrose, S. Reisinger, M. Dabs, U. Thyen, M. Klein, H. Muehlan, T. Ankermann, O. Walter, M. Rose, U. Ravens-Sieberer

Patients’ and health professionals’ understanding of and preferences for graphical presentation styles for individual-level EORTC QLQ-C30 scores

• Open Access
• Special Section: PROs in Non-Standard Settings (by invitation only)

W. Kuijpers, J. M. Giesinger, A. Zabernigg, T. Young, E. Friend, I. M. Tomaszewska, N. K. Aaronson, B. Holzner

Evaluating a new methodology for providing individualized feedback in healthcare on quality of life and its importance, using the WHOQOL-BREF in a community population

• Special Section: PROs in Non-Standard Settings (by invitation only)

Alison M. Llewellyn, Suzanne M. Skevington

Evaluating PROMIS® instruments and methods for patient-centered outcomes research: Patient and provider voices in a substance use treatment setting

• Special Section: PROs in Non-Standard Settings (by invitation only)

Kelly L. Johnston, Suzanne M. Lawrence, Nathan E. Dodds, Lan Yu, Dennis C. Daley, Paul A. Pilkonis

QLU-C10D: a health state classification system for a multi-attribute utility measure based on the EORTC QLQ-C30

M. T. King, D. S. J. Costa, N. K. Aaronson, J. E. Brazier, D. F. Cella, P. M. Fayers, P. Grimison, M. Janda, G. Kemmler, R. Norman, A. S. Pickard, D. Rowen, G. Velikova, T. A. Young, R. Viney

Using a discrete choice experiment to value the QLU-C10D: feasibility and sensitivity to presentation format

R. Norman, R. Viney, N. K. Aaronson, J. E. Brazier, D. Cella, D. S. J. Costa, P. M. Fayers, G. Kemmler, S. Peacock, A. S. Pickard, D. Rowen, D. J. Street, G. Velikova, T. A. Young, M. T. King

Health-related needs of people with multiple chronic diseases: differences and underlying factors

Petra Hopman, François G. Schellevis, Mieke Rijken

The effectiveness of a preventive health program and vitamin D status in improving health-related quality of life of older Canadians

• Open Access
• Original Paper

J. P. Ekwaru, A. Ohinmaa, Paul J. Veugelers

Smoking status and health-related quality of life: a longitudinal study in young adults

Jing Tian, Alison J. Venn, Leigh Blizzard, George C. Patton, Terry Dwyer, Seana L. Gall

Impact of Alzheimer’s disease on the family caregiver’s long-term quality of life: results from an ALSOVA follow-up study

Tarja H. Välimäki, Janne A. Martikainen, Kristiina Hongisto, Saku Väätäinen, Harri Sintonen, Anne M. Koivisto

Well-being and environmental quality: Does pollution affect life satisfaction?

• Brief Communication

Kati Orru, Hans Orru, Marek Maasikmets, Reigo Hendrikson, Mare Ainsaar

Japanese population norms for preference-based measures: EQ-5D-3L, EQ-5D-5L, and SF-6D

• Open Access

Takeru Shiroiwa, Takashi Fukuda, Shunya Ikeda, Ataru Igarashi, Shinichi Noto, Shinya Saito, Kojiro Shimozuma

The development of a questionnaire measure of diabetes-related distress in Chinese-speaking patients: the Diabetes-Related Distress Questionnaire (DRDQ)

Huey-Fen Wang, Neng-Chun Yu, Wayne H-H Sheu, Mei Chang Yeh

Dimensionality of the Center for Epidemiologic Studies Depression Scale: an exploratory bi-factor analytic study

• Open Access

Ted C. T. Fong, Cecilia L. W. Chan, Rainbow T. H. Ho, Jessie S. M. Chan, Celia H. Y. Chan, S. M. Ng

Concurrent validity of the PROMIS® pediatric global health measure

Christopher B. Forrest, Carole A. Tucker, Ulrike Ravens-Sieberer, Ramya Pratiwadi, JeanHee Moon, Rachel E. Teneralli, Brandon Becker, Katherine B. Bevans

Stability of the 13-item sense of coherence (SOC) scale: a longitudinal prospective study in women treated for breast cancer

Carina Lindblad, Kerstin Sandelin, Lena-Marie Petersson, Camelia Rohani, Ann Langius-Eklöf

Dutch–Flemish translation of nine pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)®

• Open Access
• Brief Communication

Lotte Haverman, Martha A. Grootenhuis, Hein Raat, Marion A. J. van Rossum, Eline van Dulmen-den Broeder, Karel Hoppenbrouwers, Helena Correia, David Cella, Leo D. Roorda, Caroline B. Terwee