Quality of Life Research

The current practice of handling and reporting missing outcome data in eight widely used PROMs in RCT publications: a review of the current literature

• Open Access
• Review

Ines Rombach, Oliver Rivero-Arias, Alastair M. Gray, Crispin Jenkinson, Órlaith Burke

Measuring nonspecific factors in treatment: item banks that assess the healthcare experience and attitudes from the patient’s perspective

Carol M. Greco, Lan Yu, Kelly L. Johnston, Nathan E. Dodds, Natalia E. Morone, Ronald M. Glick, Michael J. Schneider, Mary Lou Klem, Christine E. McFarland, Suzanne Lawrence, Jason Colditz, Catherine C. Maihoefer, Wayne B. Jonas, Neal D. Ryan, Paul A. Pilkonis

On the effect of adding clinical samples to validation studies of patient-reported outcome item banks: a simulation study

• Open Access

Niels Smits

Item bank development, calibration and validation for patient-reported outcomes in female urinary incontinence

Vivian W. Sung, James W. Griffith, Rebecca G. Rogers, Christina A. Raker, Melissa A. Clark

Mode effects between computer self-administration and telephone interviewer-administration of the PROMIS® pediatric measures, self- and proxy report

Brooke E. Magnus, Yang Liu, Jason He, Hally Quinn, David Thissen, Heather E. Gross, Darren A. DeWalt, Bryce B. Reeve

Health state utility instruments compared: inquiring into nonlinearity across EQ-5D-5L, SF-6D, HUI-3 and 15D

Thor Gamst-Klaussen, Gang Chen, Admassu N. Lamu, Jan Abel Olsen

Determinants of time trade-off valuations for EQ-5D-5L health states: data from the Canadian EQ-5D-5L valuation study

Fatima Al Sayah, Nick Bansback, Stirling Bryan, Arto Ohinmaa, Lise Poissant, Eleanor Pullenayegum, Feng Xie, Jeffrey A. Johnson

Discrepancies between the Dermatology Life Quality Index and utility scores

Fanni Rencz, Petra Baji, László Gulácsi, Sarolta Kárpáti, Márta Péntek, Adrienn Katalin Poór, Valentin Brodszky

Interpretation of Renal Quality of Life Profile scores in routine clinical practice: an aid to treatment decision-making

Nadine Aawar, Richard Moore, Stephen Riley, Sam Salek

Validity of standard gamble utilities in patients referred for aortic valve replacement

Amjad I. Hussain, Andrew M. Garratt, Jan Otto Beitnes, Lars Gullestad, Kjell I. Pettersen

Prognostic value of health-related quality of life in patients with metastatic pancreatic adenocarcinoma: a random forest methodology

Momar Diouf, Thomas Filleron, Anne-Laure Pointet, Anne-Claire Dupont-Gossard, David Malka, Pascal Artru, Mélanie Gauthier, Thierry Lecomte, Thomas Aparicio, Anne Thirot-Bidault, Céline Lobry, Francine Fein, Olivier Dubreuil, Bruno Landi, Aziz Zaanan, Julien Taieb, Franck Bonnetain

The association between social network factors and mental health at different life stages

Andrew Levula, Andrew Wilson, Michael Harré

Demographics, social position, dental status and oral health-related quality of life in community-dwelling older adults

• Open Access

Maria Augusta Bessa Rebelo, Evangeline Maria Cardoso, Peter G. Robinson, Mario Vianna Vettore

Frailty predicts trajectories of quality of life over time among British community-dwelling older people

• Open Access

Gotaro Kojima, Steve Iliffe, Richard W. Morris, Yu Taniguchi, Denise Kendrick, Dawn A. Skelton, Tahir Masud, Ann Bowling

Response shift and disease activity in inflammatory bowel disease

Lisa M. Lix, Eric K. H. Chan, Richard Sawatzky, Tolulope T. Sajobi, Juxin Liu, Wilma Hopman, Nancy Mayo

Health-related quality of life in multiple sclerosis: role of cognitive appraisals of self, illness and treatment

Maciej Wilski, Tomasz Tasiemski

Quality of life increases in patients with painful diabetic neuropathy following treatment with spinal cord stimulation

• Open Access

Rui V. Duarte, Lazaros Andronis, Mathieu W. P. M. Lenders, Cecile C. de Vos

Satisfaction with life in adults with Marfan syndrome (MFS): associations with health-related consequences of MFS, pain, fatigue, and demographic factors

Gry Velvin, Trine Bathen, Svend Rand-Hendriksen, Amy Østertun Geirdal

Health-related quality of life questionnaire for polycystic ovary syndrome (PCOSQ-50): development and psychometric properties

Fatemeh Nasiri-Amiri, Fahimeh Ramezani Tehrani, Masoumeh Simbar, Ali Montazeri, Reza Ali Mohammadpour

The PROMIS FatigueFM Profile: a self-report measure of fatigue for use in fibromyalgia

Anna L. Kratz, Stephen Schilling, Jenna Goesling, David A. Williams

Known-groups validity of the Patient-Reported Outcomes Measurement Information System (PROMIS®) in adolescents and young adults with special healthcare needs

• Brief Communication

Carrie R. Howell, Heather E. Gross, Bryce B. Reeve, Darren A. DeWalt, I-Chan Huang

Translation, validity and reliability of the British Sign Language (BSL) version of the EQ-5D-5L

• Open Access

Katherine D. Rogers, Mark Pilling, Linda Davies, Rachel Belk, Catherine Nassimi-Green, Alys Young

Quality of life in Iranian patients with bipolar disorder: a psychometric study of the Persian Brief Quality of Life in Bipolar Disorder (QoL.BD)

Amirhossein Modabbernia, Mohammadhossein Yaghoubidoust, Chung-Ying Lin, Bengt Fridlund, Erin E. Michalak, Greg Murray, Amir H. Pakpour

The EQ-5D-5L valuation study in Korea

Seon-Ha Kim, Jeonghoon Ahn, Minsu Ock, Sangjin Shin, Jooyeon Park, Nan Luo, Min-Woo Jo

The EORTC QLQ-CR29 quality of life questionnaire for colorectal cancer: validation of the Dutch version

• Open Access
• Brief Communication

A. M. Stiggelbout, M. Kunneman, M. C. M. Baas-Thijssen, P. A. Neijenhuis, A. K. Loor, S. Jägers, R. Vree, C. A. M. Marijnen, A. H. Pieterse