Quality of Life Research

Introduction to special section: test construction

• Editorial

Muirne C. S. Paap, Jan R. Böhnke, Carolyn E. Schwartz, Frans J. Oort

Measurement versus prediction in the construction of patient-reported outcome questionnaires: can we have our cake and eat it?

• Open Access
• Special Section: Test Construction (by invitation only)

Niels Smits, L. Andries van der Ark, Judith M. Conijn

Ensuring content validity of patient-reported outcomes: a shadow-test approach to their adaptive measurement

• Special Section: Test Construction (by invitation only)

Seung W. Choi, Wim J. van der Linden

Application of validity theory and methodology to patient-reported outcome measures (PROMs): building an argument for validity

• Open Access
• Special Section: Test Construction (by invitation only)

Melanie Hawkins, Gerald R. Elsworth, Richard H. Osborne

Fit for purpose and modern validity theory in clinical outcomes assessment

• Special Section: Test Construction (by invitation only)

Michael C. Edwards, Ashley Slagle, Jonathan D. Rubright, R. J. Wirth

Scale development with small samples: a new application of longitudinal item response theory

• Special Section: Test Construction (by invitation only)

Carrie R. Houts, Robert Morlock, Steven I. Blum, Michael C. Edwards, R. J. Wirth

Measurement invariance, the lack thereof, and modeling change

• Special Section: Test Construction (by invitation only)

Michael C. Edwards, Carrie R. Houts, R. J. Wirth

The use of latent variable mixture models to identify invariant items in test construction

• Open Access
• Special Section: Test Construction (by invitation only)

Richard Sawatzky, Lara B. Russell, Tolulope T. Sajobi, Lisa M. Lix, Jacek Kopec, Bruno D. Zumbo

A meta-analytic review of measurement equivalence study findings of the SF-36® and SF-12® Health Surveys across electronic modes compared to paper administration

• Open Access

Michelle K. White, Stephen M. Maher, Avery A. Rizio, Jakob B. Bjorner

Preference-based measures to obtain health state utility values for use in economic evaluations with child-based populations: a review and UK-based focus group assessment of patient and parent choices

• Open Access
• Review

Jane L. Wolstenholme, Danielle Bargo, Kay Wang, Anthony Harnden, Ulla Räisänen, Lucy Abel

A review of preference-based measures for the assessment of quality of life in children and adolescents with cerebral palsy

• Review

Christine Mpundu-Kaambwa, Gang Chen, Elisabeth Huynh, Remo Russo, Julie Ratcliffe

Do country-specific preference weights matter in the choice of mapping algorithms? The case of mapping the Diabetes-39 onto eight country-specific EQ-5D-5L value sets

Admassu N. Lamu, Gang Chen, Thor Gamst-Klaussen, Jan Abel Olsen

Health state utility values of high prevalence mental disorders in Australia: results from the National Survey of Mental Health and Wellbeing

Cathrine Mihalopoulos, Lidia Engel, Long Khanh-Dao Le, Anne Magnus, Meredith Harris, Mary Lou Chatterton

People in states worse than dead according to the EQ-5D UK value set: would they rather be dead?

• Open Access

Lars Bernfort, Björn Gerdle, Magnus Husberg, Lars-Åke Levin

Evaluation of options for presenting health-states from PROMIS® item banks for valuation exercises

Janel Hanmer, David Cella, David Feeny, Baruch Fischhoff, Ron D. Hays, Rachel Hess, Paul A. Pilkonis, Dennis Revicki, Mark Roberts, Joel Tsevat, Lan Yu

Agreement between retrospectively and contemporaneously collected patient-reported outcome measures (PROMs) in hip and knee replacement patients

• Open Access

Esther Kwong, Jenny Neuburger, Nick Black

Coping mediates the relationship between sense of coherence and mental quality of life in patients with chronic illness: a cross-sectional study

• Open Access

Marja-Leena Kristofferzon, Maria Engström, Annika Nilsson

Quality of life of patients with gastrointestinal cancers undergoing chemotherapy

Ilufredo Y. Tantoy, Bruce A. Cooper, Anand Dhruva, Janine Cataldo, Steven M. Paul, Yvette P. Conley, Marilyn Hammer, Kord M. Kober, Jon D. Levine, Christine Miaskowski

Importance ratings on patient-reported outcome items for survivorship care: comparison between pediatric cancer survivors, parents, and clinicians

• Brief Communication

Conor M. Jones, Justin N. Baker, Rachel M. Keesey, Ruth J. Eliason, Jennifer Q. Lanctot, Jennifer L. Clegg, Belinda N. Mandrell, Kirsten K. Ness, Kevin R. Krull, Deokumar Srivastava, Christopher B. Forrest, Melissa M. Hudson, Leslie L. Robison, I-Chan Huang

PROMIS®-29 v2.0 profile physical and mental health summary scores

Ron D. Hays, Karen L. Spritzer, Benjamin D. Schalet, David Cella

The importance of content and face validity in instrument development: lessons learnt from service users when developing the Recovering Quality of Life measure (ReQoL)

• Open Access

Janice Connell, Jill Carlton, Andrew Grundy, Elizabeth Taylor Buck, Anju Devianee Keetharuth, Thomas Ricketts, Michael Barkham, Dan Robotham, Diana Rose, John Brazier

The modified Memorial Symptom Assessment Scale Short Form: a modified response format and rational scoring rules

• Brief Communication

J. L. Sharp, K. Gough, M. C. Pascoe, A. Drosdowsky, V. T. Chang, P. Schofield

Validation of the PROMIS Sleep Disturbance and Sleep-Related Impairment item banks in Dutch adolescents

• Open Access

Jojanneke A. M. C. van Kooten, Raphaёle R. L. van Litsenburg, Whitney R. Yoder, Gertjan J. L. Kaspers, Caroline B. Terwee

Psychometric evaluation of the Chinese version of the Child Health Utility 9D (CHU9D-CHN): a school-based study in China

Peirong Yang, Gang Chen, Peng Wang, Kejian Zhang, Feng Deng, Haifeng Yang, Guihua Zhuang

Activity pacing: moving beyond taking breaks and slowing down

• Open Access
• Brief Communication

Deborah Antcliff, Philip Keeley, Malcolm Campbell, Steve Woby, Anne-Maree Keenan, Linda McGowan