Quality of Life Research

Measuring pediatric patient-reported outcomes: good progress but a long way to go

• Editorial

I-Chan Huang, Dennis A. Revicki, Carolyn E. Schwartz

Patient-important activity and participation outcomes in clinical trials involving children with chronic conditions

• Pediatric QOL Special Section

Nora Fayed, Olaf Kraus de Camargo, Inam Elahi, Ankita Dubey, Ricardo M. Fernandes, Amy Houtrow, Eyal Cohen

A review of patient-reported outcomes for children and adolescents with obesity

• Review

Bani Ahuja, Anne F. Klassen, Randi Satz, Nikita Malhotra, Elena Tsangaris, Matthew Ventresca, Nora Fayed

Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model

• Pediatric QOL Special Section

Samantha J. Anthony, Enid Selkirk, Lillian Sung, Robert J. Klaassen, David Dix, Katrin Scheinemann, Anne F. Klassen

The European KIDSCREEN approach to measure quality of life and well-being in children: development, current application, and future advances

• Open Access
• Pediatric QOL Special Section

Ulrike Ravens-Sieberer, Michael Herdman, Janine Devine, Christiane Otto, Monika Bullinger, Matthias Rose, Fionna Klasen

Longitudinal construct validity of the Health Utilities Indices Mark 2 and Mark 3 in hip fracture

C. Allyson Jones, Sheri L. Pohar, David H. Feeny, Ken Eng

Development and validation of the functional assessment of chronic illness therapy treatment satisfaction (FACIT TS) measures

John D. Peipert, Jennifer L. Beaumont, Rita Bode, Dave Cella, Sofia F. Garcia, Elizabeth A. Hahn

International development of an EORTC questionnaire for assessing health-related quality of life in chronic myeloid leukemia patients: the EORTC QLQ-CML24

Fabio Efficace, Michele Baccarani, Massimo Breccia, Susanne Saussele, Gregory Abel, Giovanni Caocci, Francois Guilhot, Kim Cocks, Adel Naeem, Mirjam Sprangers, Simone Oerlemans, Weichu Chie, Fausto Castagnetti, Felice Bombaci, Giora Sharf, Annarita Cardoni, Lucien Noens, Stephan Pallua, Marzia Salvucci, Ourania Nicolatou-Galitis, Gianantonio Rosti, Franco Mandelli

Development of a measure of asthma-specific quality of life among adults

Nicole K. Eberhart, Cathy D. Sherbourne, Maria Orlando Edelen, Brian D. Stucky, Nancy L. Sin, Marielena Lara

The EORTC QLQ-C15-PAL questionnaire: validation study for Spanish bone metastases patients

• Brief Communication

Juan Ignacio Arraras, Fernando Arias de la Vega, Gemma Asin, Mikel Rico, Uxue Zarandona, Clara Eito, Koldo Cambra, Marta Barrondo, Marta Errasti, Juan Verdún, Jose Rivadeneira, Miguel Angel Dominguez

The Spanish version of the Warwick-Edinburgh Mental Well-Being Scale (WEMWBS) is valid for use in the general population

Pere Castellví, Carlos G. Forero, Miquel Codony, Gemma Vilagut, Pilar Brugulat, Antonia Medina, Andrea Gabilondo, Anna Mompart, Joan Colom, Ricard Tresserras, Montse Ferrer, Sarah Stewart-Brown, Jordi Alonso

Preliminary reliability and validity of Persian version of the Family Dermatology Life Quality Index (FDLQI)

H. Safizadeh, N. Nakhaee, S. Shamsi-meymandi, N. Pourdamghan, M. K. A. Basra

Psychometric evaluation of the hepatitis C virus patient-reported outcomes (HCV-PRO) instrument: validity, responsiveness, and identification of the minimally important difference in a phase 2 clinical trial

Roger T. Anderson, Robert W. Baran, Pennifer Erickson, Dennis A. Revicki, Birgitta Dietz, Katherine Gooch

Qualitative development of the ‘Questionnaire on Pain caused by Spasticity (QPS),’ a pediatric patient‐reported outcome for spasticity‐related pain in cerebral palsy

• Open Access

Thorin L. Geister, Manjari Quintanar-Solares, Mona Martin, Stephan Aufhammer, Friedrich Asmus

Equivalence and measurement properties of an electronic version of the Psoriasis Symptom Inventory

Donald M. Bushnell, Mona L. Martin, Michael Scanlon, TeChieh Chen, Dina Chau, Hema N. Viswanathan

Validity and reliability of the Chinese version of the Short Form of Quality of Life Enjoyment and Satisfaction Questionnaire (Q-LES-Q-SF)

Yun-Tse Lee, Shen-Ing Liu, Hui-Chun Huang, Fang-Ju Sun, Chiu-Ron Huang, Albert Yeung

Psychometric properties of the Dutch Short Musculoskeletal Function Assessment (SMFA) questionnaire in patients with a fracture of the upper or lower extremity

• Brief Communication

M. A. C. Van Son, B. L. Den Oudsten, J. A. Roukema, T. Gosens, M. H. J. Verhofstad, J. De Vries

Validity, reliability and discriminative capacity of an electronic quality of life instrument (Pelican) for childhood asthma in the Netherlands

S. van Bragt, L. van den Bemt, B. Thoonen, J. Jacobs, P. Merkus, T. Schermer

Quality of life for parents of children with influenza-like illness: development and validation of Care-ILI-QoL

Maria Yui Kwan Chow, Angela Morrow, Leon Heron, Jiehui Kevin Yin, Robert Booy, Julie Leask

Validation of the Rhinoplasty Outcomes Evaluation (ROE) questionnaire adapted to Brazilian Portuguese

Suemy Cioffi Izu, Eduardo Macoto Kosugi, Alessandra Stanquini Lopes, Karen Vitols Brandão, Leonardo Bomediano Garcia Sousa, Vinícius Magalhães Suguri, Luis Carlos Gregório

Understanding social forces involved in diabetes outcomes: a systems science approach to quality-of-life research

• Commentary

David W. Lounsbury, Gary B. Hirsch, Chawntel Vega, Carolyn E. Schwartz

Reporting of health-related quality of life (HRQOL) data in oncology trials: a comparison of the European Organization for Research and Treatment of Cancer Quality of Life (EORTC QLQ-C30) and the Functional Assessment of Cancer Therapy-General (FACT-G)

Adam B. Smith, Kim Cocks, David Parry, Matthew Taylor

Assessing the performance of the EQ-VAS in the NHS PROMs programme

• Open Access

Yan Feng, David Parkin, Nancy J. Devlin

Demographic and clinical characteristics associated with quality of life in patients with chronic obstructive pulmonary disease

Signe Berit Bentsen, Christine Miaskowski, Tone Rustøen

Quality of life of glaucoma patients in China: sociodemographic, clinical, and psychological correlates—a cross-sectional study

Chuandi Zhou, Shaohong Qian, Peixia Wu, Chen Qiu

Health-risk behaviors and quality of life among young men

Michelle Dey, Gerhard Gmel, Joseph Studer, Meichun Mohler-Kuo

The impact of severe preeclampsia on maternal quality of life

Christina Stern, Eva-Maria Trapp, Eva Mautner, Maria Deutsch, Uwe Lang, Mila Cervar-Zivkovic

Change in quality of life and predictors of change among patients with multiple sclerosis: a prospective cohort study

Darija Kisic Tepavcevic, Tatjana Pekmezovic, Nebojsa Stojsavljevic, Jelena Kostic, Irena Dujmovic Basuroski, Sarlota Mesaros, Jelena Drulovic

The mediating role of disability and social support in the association between low vision and depressive symptoms in older adults

• Brief Communication

Gertrudis I. J. M. Kempen, Adelita V. Ranchor, Ton Ambergen, G. A. Rixt Zijlstra