Quality of Life Research

Use of the visual analogue scale for health state valuation: a scoping review

• Open Access
• Review

Mimmi Åström, Zin Min Thet Lwin, Fitsum Sebsibe Teni, Kristina Burström, Jenny Berg

The use of PROMIS measures in clinical studies in patients with inflammatory arthritis: a systematic review

• Open Access
• Review

M. M. H. Teuwen, I. R. E. Knaapen, T. P. M. Vliet Vlieland, J. W. Schoones, C. H. M. van den Ende, S. F. E. van Weely, M. G. J. Gademan

Interventions for improving clinical outcomes and health-related quality-of-life for people living with skeletal dysplasias: an evidence gap map

• Open Access
• Review

Naomi Moy, Darren Flynn, Josefa Henriquez, Luke B. Connelly, Luke Vale, Francesco Paolucci

Enabling QALY estimation in mental health trials and care settings: mapping from the PHQ-9 and GAD-7 to the ReQoL-UI or EQ-5D-5L using mixture models

• Open Access

Matthew Franklin, Monica Hernández Alava

Using bookmarking methods with orthopedic clinicians and patients with fractures produces score interpretation labels for patient-reported outcome measures

• Open Access

Nan E. Rothrock, Sandra A. Wilson, Marilyn Heng, Aleksandra Hodor, Alexander Joeris, Aaron J. Kaat, Karma McKelvey, Benjamin D. Schalet, Mark Vrahas

The Personalized Priority and Progress Questionnaire (PPPQ): A personalized instrument for quality of life and self-management for use in clinical trials and practice

• Open Access

Judith Tommel, Cinderella K. Cardol, Andrea W. M. Evers, Rianne Stuivenberg, Sandra van Dijk, Henriët van Middendorp

The structure of well-being: a single underlying factor with genetic and environmental influences

• Open Access

Ludvig Daae Bjørndal, Ragnhild Bang Nes, Nikolai Czajkowski, Espen Røysamb

Assessing the validity and responsiveness of a generic preference quality of life measure in the context of posttraumatic stress disorder

• Open Access

Sheradyn R. Matthews, Marja Elizabeth, Larissa N. Roberts, Billingsley Kaambwa, Tracey D. Wade, Reginald D. V. Nixon

Dutch normative data of the sexual distress scale and the body image scale

• Open Access

Anouk S. Huberts, Noëlle J. M. C. Vrancken Peeters, Z. L. Rana Kaplan, Reinier C. A. van Linschoten, H. Pastoor, C. Janneke van der Woude, Linetta B. Koppert

Measuring PROMIS pain interference in German patients with chronic conditions: calibration, validation, and cross-cultural use of item parameters

• Open Access

Alexander Obbarius, Christoph Paul Klapproth, Gregor Liegl, Paula M. Christmann, Udo Schneider, Felix Fischer, Matthias Rose

Classification of pain intensity with the pain beliefs and perceptions inventory (PBPI) and the pain catastrophizing scales (PCS)

• Open Access

Angel Blanch, Sílvia Solé

GOunder/Desmoid Tumor Research Foundation DEsmoid Symptom/Impact Scale (GODDESS©): psychometric properties and clinically meaningful thresholds as assessed in the Phase 3 DeFi randomized controlled clinical trial

• Open Access

Mrinal M. Gounder, Thomas M. Atkinson, Timothy Bell, Christina Daskalopoulou, Pip Griffiths, Moriah Martindale, L. Mary Smith, Allison Lim

Measuring skill-based health literacy in chronic airway disease patients: the development and psychometric evaluation of the Vancouver airways health literacy tool (VAHLT)

Richard E. Hohn, Jacek A. Kopec, Richard Sawatzky, Iraj Poureslami, J. Mark FitzGerald

Patient-preferred outcomes in patients with vestibular schwannoma: a qualitative content analysis of symptoms, side effects and their impact on health-related quality of life

• Open Access

Ineke M. J. Pruijn, Phylisha van Heemskerken, Henricus P. M. Kunst, Marcia Tummers, Wietske Kievit

Patient-reported mental health and well-being trajectories in oncology patients during radiation therapy: an exploratory retrospective cohort analysis using the Ontario Cancer Registry

Jae-Yung Kwon, Jacek Kopec, Jason M. Sutherland, Leah K. Lambert, Aslam H. Anis, Richard Sawatzky

Cognitive impairment and health-related quality of life amongst older Australians: evidence from a longitudinal investigation

• Open Access

Syed Afroz Keramat, Vanessa Lee, Rajat Patel, Rubayyat Hashmi, Tracy Comans

The differentiating effect of COVID-19-associated stress on the morbidity of blood donors with symptoms of hidradenitis suppurativa, hyperhidrosis, or psoriasis

M. A. S. Henning, M. Didriksen, K. S. Ibler, S. R. Ostrowski, C. Erikstrup, K. Nielsen, S. G. Sækmose, T. F. Hansen, H. Ullum, L. W. Thørner, K. A. Kaspersen, S. Mikkelsen, G. B. E. Jemec, O. B. Pedersen

Chronic kidney disease-associated pruritus (CKD-aP) is associated with worse quality of life and increased healthcare utilization among dialysis patients

Jasmine Ion Titapiccolo, Caterina Lonati, Berit Goethel-Paal, Abraham Rincon Bello, Francesco Bellocchio, Alessandro Pizzo, Maxime Theodose, Maria Eva Baro Salvador, Michaela Schofield, Mario Cioffi, Kolitha Basnayake, Chis Chisholm, Suzanne Mitrovic, Marjelka Trkulja, Hans-Juergen Arens, Stefano Stuard, Luca Neri

Health-related quality of life in patients with newly diagnosed inflammatory bowel disease: an observational prospective cohort study (IBSEN III)

• Open Access

Bjorn Christian Olsen, Randi Opheim, Vendel A. Kristensen, Marte Lie Høivik, Charlotte Lund, Tone Bergene Aabrekk, Ingunn Johansen, Kristina Holten, Vibeke Strande, May-Bente Bengtson, Petr Ricanek, Trond Espen Detlie, Tomm Bernklev, Lars-Petter Jelsness-Jørgensen, Gert Huppertz-Hauss

Parent-reported health-related quality of life in pediatric childhood cancer survivors and factors associated with poor health-related quality of life in aftercare

• Open Access

Jana Winzig, Laura Inhestern, Verena Paul, Mona L. Nasse, Konstantin A. Krauth, Daniela Kandels, Stefan Rutkowski, Gabriele Escherich, Corinna Bergelt

Mental health-related quality of life in mothers of children with surgically repaired congenital heart disease: a 13-year longitudinal study

• Open Access

Melanie Ehrler, Corina Wettach, Ingrid Beck, Emanuela R. Valsangiacomo Buechel, Beatrice Latal, Markus A. Landolt

Assessing micro- vs macro-costing approaches for treating appendicitis in children with appendicectomy or non-operatively

• Open Access

Maria Chorozoglou, Isabel Reading, Simon Eaton, Shehryer Naqvi, Caroline Pardy, Keren Sloan, Christina Major, Natasha Demellweek, Nigel J. Hall

Correction to: Active and sham transcranial direct current stimulation (tDCS) improved quality of life in female patients with fibromyalgia

• Open Access
• Correction

N. Samartin-Veiga, A. J. González-Villar, M. Pidal-Miranda, A. Vázquez-Millán, M. T. Carrillo-de-la-Peña

Correction to: Suitability of the animated activity questionnaire for use as computer adaptive test: establishing the AAQ‑CAT

• Open Access
• Correction

Gregor Liegl, Leo D. Roorda, Caroline B. Terwee, Martijn Steultjens, Ewa M. Roos, Francis Guillemin, Maria Grazia Benedetti, Hanne Dagfnrud, Alessandra de Carvalho Bastone, Wilfred F. Peter