Quality of Life Research

A process-based approach to health-related quality of life as a “way of living”

• Open Access
• Review

R. P. Nolan, M. J. Sharpe

Patient-reported outcomes and patient-reported outcome measures in liver transplantation: a scoping review

• Review

Ali Vedadi, Roula Khairalla, Adrian Che, Ahsas Nagee, Mohammed Saqib, Ali Ayub, Aghna Wasim, Sara Macanovic, Ani Orchanian-Cheff, Nazia Selzner-Malekkiani, Susan Bartlett, Istvan Mucsi

Assessing the psychometric properties of quality of life measures in individuals with amyotrophic lateral sclerosis: a systematic review

• Review

Faryal Zahir, Alicia Hanman, Nazmehr Yazdani, Sabrina La Rosa, Gemma Sleik, Brooke Sullivan, Ava Mehdipour, Selina Malouka, Ayse Kuspinar

China Health Related Outcomes Measures (CHROME): development of a descriptive system to support cardiovascular disease specific preference-based measure for the Chinese population

Xue Li, Kun Zhao, Kexin Li, Wenjun Wang, Siting Feng, Jing Wu, Xiaoning He, Shitong Xie, Hao Hu, Jing Fan, Qiang Fu, Feng Xie

Updated normative data for the EORTC QLQ-C30 in the general Dutch population by age and sex: a cross-sectional panel research study

• Open Access

K. M. de Ligt, N. K. Aaronson, G. Liegl, S. Nolte

Normative profile of the EQ-5D-5L dimensions, EQ-5D-5L index and EQ-VAS scores for the general Thai population

Krittaphas Kangwanrattanakul

Health utilities and willingness to pay in adult patients with coeliac disease in Hungary

• Open Access

M. Mercédesz Angyal, Peter L. Lakatos, Balázs Jenei, Valentin Brodszky, Fanni Rencz

Health-state utilities in long-term advanced melanoma survivors comparable with the general population

M. D. Egeler, L. V. van de Poll-Franse, R. Tissier, A. Rogiers, M. J. Boers-Sonderen, A. J. van den Eertwegh, G. A. Hospers, J. W. B. de Groot, M. J. B. Aarts, E. Kapiteijn, D. Piersma, G. Vreugdenhil, A. A. van der Veldt, K. P. M. Suijkerbuijk, B. Neyns, K. J. Janssen, C. U. Blank, V. P. Retèl, A. H. Boekhout

A comparison of the Child Health Utility 9D and the Health Utilities Index for estimating health utilities in pediatric inflammatory bowel disease

• Open Access

Naazish S. Bashir, Thomas D. Walters, Anne M. Griffiths, Anthony Otley, Jeff Critch, Wendy J. Ungar

Novel prognostic factors for successful treatment of pediatric chronic rhinosinusitis using the sinus and nasal quality of life survey (SN-5H)

Ofir Zavdy, Gilad Golan, Dan Yaniv, Lirit Levi, Moshe Hain, Roy Hod, Dror Gilony

Parent-youth convergence (and divergence) in reports about pediatric quality of life

Rhonda C. Boyd, Jason D. Jones, Bridget A. Makol, Andres De Los Reyes, Claire E. Hatkevich, Tami D. Benton

Patients’ perspectives on irritable bowel syndrome: a qualitative analysis based on social media in China

Shaopeng Sun, Jiajia Chen, Heng Li, Yijie Lou, Lixia Chen, Bin Lv

Content validation of a daily patient-reported outcome measure for assessing symptoms in patients with Small Intestinal Bacterial Overgrowth

• Open Access

Neha Durgam, Ankur A. Dashputre, Olga Moshkovich, Ali Rezaie, Nicholas Martinez, Pedram Enayati, James Stansbury, George Joseph

Caregivers of patients with malignant pleural mesothelioma: who provides care, what care do they provide and what burden do they experience?

• Open Access

Adam Moore, Bryan Bennett, Gavin Taylor-Stokes, Melinda J. Daumont

Psychometrics of patient-reported bother from side effects of treatment single-items in industry-sponsored oncology trials

Peter C. Trask, Tracy Holt, Timothy Pearman

Characteristics of patients diagnosed with pancreatic cancer who access palliative care: An observational study

• Open Access

Nadia N. Khan, Sue M. Evans, Liane J. Ioannou, Charles H. C. Pilgrim, Megan Blanchard, Barbara Daveson, Jennifer Philip, John R. Zalcberg, Luc te Marvelde

Quality of life with docetaxel plus cisplatin versus paclitaxel plus carboplatin in patients with completely resected non-small cell lung cancer: quality of life analysis of TORG 0503

Ayako Matsuda, Kazue Yamaoka, Hideo Kunitoh, Takashi Seto, Masahiro Tsuboi, Tatsuo Ohira, Riichiroh Maruyama, Hiroaki Okamoto, Kaoru Kubota

Longitudinal changes of health-related quality of life over 10 years in breast cancer patients treated with radiotherapy following breast-conserving surgery

• Open Access

Yifeng Gao, Juan C. Rosas, Hanna Fink, Sabine Behrens, Jenny Chang-Claude, Petra Seibold

Health-related quality of life 12 years after injury: prevalence and predictors of outcomes in a cohort of injured Māori

• Open Access

Brett Maclennan, Sarah Derrett, Emma Wyeth

Measuring glaucoma quality of life in an Asian population using item banking: psychometric evaluation and computerized adaptive testing simulations

Eva K. Fenwick, Belicia Lim, Ryan E. K. Man, Mani Baskaran, Monisha Nongpiur, Chelvin C. A. Sng, Jayant Venkatramani Iyer, Rahat Husain, Shamira Perera, Tina Wong, Jin Rong Low, Bao Sheng Loe, Olivia Shimin Huang, Katherine Lun, Tin Aung, Ecosse L. Lamoureux

Post-discharge health assessment in survivors of coronavirus disease: a time-point analysis of a prospective cohort study

Ramin Sami, Sina Arabi, Khojasteh Ghasemi, Mahsa Akafzadeh, Sara Ebrahimi, Arash Toghyani, Razieh Mahvari, Reza Moayednia, Seyed Amir Dadkhahi, Sara Sadeghi, Hamid Reza Marateb, Peyman Adibi, Aryan Kavosh, Marjan Mansourian

Health-related quality of life before and during the COVID-19 pandemic in Switzerland: a cross-sectional study

• Open Access

Katharina Roser, Julia Baenziger, Anica Ilic, Vera R. Mitter, Luzius Mader, Daniela Dyntar, Gisela Michel, Grit Sommer

Trajectories of health-related quality of life and their predictors in adult COVID-19 survivors: A longitudinal analysis of the Biobanque Québécoise de la COVID-19 (BQC-19)

Pamela Tanguay, Simon Décary, Samuel Lemaire-Paquette, Guillaume Léonard, Alain Piché, Marie-France Dubois, Dahlia Kairy, Gina Bravo, Hélène Corriveau, Nicole Marquis, Michel Tousignant, Michaël Chassé, Livia Pinheiro Carvalho