Quality of Life Research

Are OMERACT recommendations followed in clinical trials on fibromyalgia? A systematic review of patient-reported outcomes and their measures

• Open Access
• Review

Annika Döhmen, Milan Kock, Felix Fischer, Matthias Rose, Alexander Obbarius, Christoph Paul Klapproth

Quality of the adaptation procedures and psychometric properties of the scale of oral health outcomes for 5-year-old children (SOHO-5): a systematic review

• Review

Saw Nay Min, Duangporn Duangthip, Sherry Shiqian Gao, Palinee Detsomboonrat

Correction: Quality of the adaptation procedures and psychometric properties of the scale of oral health outcomes for 5‑year‑old children (SOHO‑5): a systematic review

• Correction

Saw Nay Min, Duangporn Duangthip, Sherry Shiqian Gao, Palinee Detsomboonrat

Quality of life in postmenopausal women with osteoporosis: a systematic review and meta-analysis

• Review

Sasa Gao, Yongfang Zhao

Cross-sectional study examining psychometric properties of the Slovenian version of the 14-item Resilience Scale (RS-14-SL)

Špela Miroševič, Polona Selič–Zupančič, Judith Prins, Zalika Klemenc–Ketiš

Reliability and validity of the simplified Chinese version of the Functional Assessment of Cancer Therapy-Immune Checkpoint Modulator

Xiangmin Meng, Meimei Shang, Qian Wang, Rong Yan, Kai Jiang, Junai Xiang, Wenhui Liu, Jian Li, Di Wang, Juan Xu

Development of a standard set of PROs and generic PROMs for Dutch medical specialist care

• Open Access

Martijn Oude Voshaar, Caroline B. Terwee, Lotte Haverman, Bas van der Kolk, Marleen Harkes, Christiaan S. van Woerden, Fenna van Breda, Stephanie Breukink, Irma de Hoop, Hester Vermeulen, Evelien de Graaf, Jan Hazelzet, Barbara van Leiden, Jozette Stienen, Marian Hoekstra, Hans Bart, Hester van Bommel, Domino Determann, Mariët Verburg, Philip van der Wees, Anna J. Beurskens

Correction: Development of a standard set of PROs and generic PROMs for Dutch medical specialist care

• Open Access
• Correction

Martijn Oude Voshaar, Caroline B. Terwee, Lotte Haverman, Bas van der Kolk, Marleen Harkes, Christiaan S. van Woerden, Fenna van Breda, Stephanie Breukink, Irma de Hoop, Hester Vermeulen, Evelien de Graaf, Jan Hazelzet, Barbara van Leiden, Jozette Stienen, Marian Hoekstra, Hans Bart, Hester van Bommel, Domino Determann, Mariët Verburg, Philip van der Wees, Anna J. Beurskens

The relative contribution of co-morbidities to health-related quality of life of people with idiopathic pulmonary fibrosis using the Assessment of Quality of Life-8-Dimension multi-attribute utility instrument

Qiang Zheng, Ingrid A. Cox, Barbara de Graaff, Julie A. Campbell, Tamera J. Corte, Ian Glaspole, Vidya Navaratnam, Peter Hopkins, Chris Zappala, Hasnat Ahmad, Ting Zhao, Sacha Macansh, E. Haydn Walters, Andrew J. Palmer

Comparative analysis of pediatric anxiety measures in clinical sample: evaluation of the PROMIS pediatric anxiety short forms

John T. Parkhurst, Tara Von Mach, Anthony T. Vesco, Caroline E. Kerns, John V. Lavigne

Health-related quality of life in seven European countries throughout the course of the COVID-19 pandemic: evidence from the European COvid Survey (ECOS)

• Open Access

Hans-Helmut König, Sebastian Neumann-Böhme, Iryna Sabat, Jonas Schreyögg, Aleksandra Torbica, Job van Exel, Pedro Pita Barros, Tom Stargardt, André Hajek

Content validity and psychometric properties of the inFLUenza Patient-Reported Outcome Plus (FLU-PRO Plus©) instrument in patients with COVID-19

• Open Access

Tom J. H. Keeley, Sacha Satram, Parima Ghafoori, Carolina Reyes, Helen J. Birch, Kimberly Raymond, Heather L. Gelhorn, Mark Kosinski, Cory D. Saucier, April Mitchell Foster, Amanda Lopuski, John H. Powers III

Establishing severity levels for patient-reported measures of functional communication, participation, and perceived cognitive function for adults with acquired cognitive and language disorders

• Open Access

Matthew L. Cohen, Stacy M. Harnish, Alyssa M. Lanzi, Jennifer Brello, William D. Hula, David Victorson, Ratna Nandakumar, Pamela A. Kisala, David S. Tulsky

What is important to adults after lower limb reconstruction surgery: a conceptual framework

• Open Access

Heather Leggett, Arabella Scantlebury, Catherine Hewitt, Hemant Sharma, Catriona McDaid, Joy Adamson, Kim Cocks, Paul Harwood, David Ferguson, Reggie Hamdy, Nando Ferreira

Disagreement between mothers' and fathers' rating of health-related quality of life in children with cancer

• Open Access

Andreas Meryk, Gabriele Kropshofer, Benjamin Hetzer, David Riedl, Jens Lehmann, Gerhard Rumpold, Alexandra Haid, Verena Schneeberger-Carta, Christina Salvador, Evelyn Rabensteiner, Maria-Sophie Rothmund, Bernhard Holzner, Roman Crazzolara

The associations between HIV stigma and mental health symptoms, life satisfaction, and quality of life among Black sexual minority men with HIV

Chenglin Hong, Ayako Miyashita Ochoa, Bianca D. M. Wilson, Elizabeth S. C. Wu, Damone Thomas, Ian W. Holloway

Comparative evaluation of the health utilities index mark 3 and the short form 6D: evidence from an individual participant data meta-analysis of very preterm and very low birthweight adults

• Open Access

Corneliu Bolbocean, Peter J. Anderson, Peter Bartmann, Jeanie L. Y. Cheong, Lex W. Doyle, Dieter Wolke, Stavros Petrou

Impact of episodic and chronic vestibular disorders on health-related quality of life and functioning—results from the DizzyReg patient registry

Ralf Strobl, Saly Harajli, Doreen Huppert, Andreas Zwergal, Eva Grill

Psychological interventions improve quality of life despite persistent pain in endometriosis: results of a 3-armed randomized controlled trial

• Open Access

K. E. Hansen, B. Brandsborg, U. S. Kesmodel, A. Forman, M. Kold, R. Pristed, O. Donchulyesko, D. Hartwell, L. Vase

Development and psychometric validation of a patient-reported outcome measure of recurrent urinary tract infection impact: the Recurrent UTI Impact Questionnaire

• Open Access

Abigail F. Newlands, Lindsey Roberts, Kayleigh Maxwell, Melissa Kramer, Jessica L. Price, Katherine A. Finlay

Quality of life among family caregivers of people with schizophrenia in rural China

Shu-Yu Deng, Yi-Zhou Wang, Man-Man Peng, Tian-Ming Zhang, Ming Li, Wei Luo, Mao-Sheng Ran

Comparing the effects of reduced social contact on psychosocial wellbeing before and during the COVID-19 pandemic: a longitudinal survey from two Norwegian counties

• Open Access

Jorid Kalseth, Marian Ådnanes, Solveig Osborg Ose, Eva Lassemo, Silje L. Kaspersen, Roshan das Nair

Mapping the EQ-5D-5L from the Spanish national health survey functional disability scale through Bayesian networks

Alba Ayala, Yolanda Ramallo-Fariña, Amaia Bilbao-Gonzalez, Maria João Forjaz

Content validation of the SF-36v2® Health Survey Acute for use in hypoparathyroidism

• Open Access

Meryl Brod, Laura Tesler Waldman, Aimee D. Shu, Alden Smith

A cross-sectional study of patient-reported outcomes and symptom burden using PROMIS and PRO-CTCAE measures in light chain amyloidosis

Anita D’Souza, Aniko Szabo, Idayat Akinola, Muriel Finkel, Kathryn E. Flynn

Estimating meaningful thresholds for multi-item questionnaires using item response theory

• Open Access

Berend Terluin, Jaimy E. Koopman, Lisa Hoogendam, Pip Griffiths, Caroline B. Terwee, Jakob B. Bjorner