Quality of Life Research

Introduction to the special section: “Methodologies and considerations for meaningful change”

• Editorial

Andrew Trigg, William R. Lenderking, Jan R. Boehnke

Common methods of determining meaningful change in clinical practice: implications for precision patient-reported outcomes

• Special Section: Methodologies for Meaningful Change

Salene M. W. Jones, Aliana Gaffney, Joseph M. Unger

The challenges inherent with anchor-based approaches to the interpretation of important change in clinical outcome assessments

• Special Section: Methodologies for Meaningful Change

Kathleen W. Wyrwich, Geoffrey R. Norman

How scoring limits the usability of minimal important differences (MIDs) as responder definition (RD): an exemplary demonstration using EORTC QLQ-C30 subscales

• Special Section: Methodologies for Meaningful Change

Kim Cocks, Jacqueline Buchanan

How strong should my anchor be for estimating group and individual level meaningful change? A simulation study assessing anchor correlation strength and the impact of sample size, distribution of change scores and methodology on establishing a true meaningful change threshold

• Special Section: Methodologies for Meaningful Change

Pip Griffiths, Joel Sims, Abi Williams, Nicola Williamson, David Cella, Elaine Brohan, Kim Cocks

Correction: How strong should my anchor be for estimating group and individual level meaningful change? A simulation study assessing anchor correlation strength and the impact of sample size, distribution of change scores and methodology on establishing a true meaningful change threshold

• Correction

Pip Griffiths, Joel Sims, Abi Williams, Nicola Williamson, David Cella, Elaine Brohan, Kim Cocks

Establishing thresholds for meaningful within-individual change using longitudinal item response theory

• Open Access
• Special Section: Methodologies for Meaningful Change

Jakob Bue Bjorner, Berend Terluin, Andrew Trigg, Jinxiang Hu, Keri J. S. Brady, Pip Griffiths

Comparison of anchor-based methods for estimating thresholds of meaningful within-patient change using simulated PROMIS PF 20a data under various joint distribution characteristic conditions

• Special Section: Methodologies for Meaningful Change

Shanshan Qin, Lauren Nelson, Nicole Williams, Valerie Williams, Randall Bender, Lori McLeod

Transitions in depression: if, how, and when depressive symptoms return during and after discontinuing antidepressants

• Open Access
• Special Section: Methodologies for Meaningful Change

Arnout C. Smit, Evelien Snippe, Laura F. Bringmann, H. J. Rogier Hoenders, Marieke Wichers

“From Where I Stand”: using multiple anchors yields different benchmarks for meaningful improvement and worsening in the rheumatoid arthritis flare questionnaire (RA-FQ)

• Special Section: Methodologies for Meaningful Change

Susan J. Bartlett, Vivian P. Bykerk, Orit Schieir, Marie-France Valois, Janet E. Pope, Gilles Boire, Carol Hitchon, Glen Hazlewood, Louis Bessette, Edward Keystone, Carter Thorne, Diane Tin, Clifton O. Bingham III, M Baron, I Colmegna, S Fallavollita, D Haaland, B Haraoui, S Jamal, R Joshi, B Nair, P Panopoulos, L Rubin, E Villeneuve, M Zummer

Using qualitative methods to establish the clinically meaningful threshold for treatment success in alopecia areata

• Special Section: Methodologies for Meaningful Change

Kathleen W. Wyrwich, Helen Kitchen, Sarah Knight, Natalie V. J. Aldhouse, Jake Macey, Natasha Mesinkovska, Justin M. Ko, Brett A. King

A qualitative study to examine meaningful change in physical function associated with weight-loss

• Open Access
• Special Section: Methodologies for Meaningful Change

Jiat-Ling Poon, Chris Marshall, Chloe Johnson, Hannah C. Pegram, Maile Hunter, Hongjun Kan, Nadia N. Ahmad

Likely change indexes improve estimates of individual change on patient-reported outcomes

• Special Section: Methodologies for Meaningful Change

John Devin Peipert, Ron D. Hays, David Cella

Correction: Likely change indexes improve estimates of individual change on patient‑reported outcomes

• Correction

John Devin Peipert, Ron D. Hays, David Cella

Identifying meaningful change on PROMIS short forms in cancer patients: a comparison of item response theory and classic test theory frameworks

• Open Access
• Special Section: Methodologies for Meaningful Change

Minji K. Lee, John D. Peipert, David Cella, Kathleen J. Yost, David T. Eton, Paul J. Novotny, Jeff A. Sloan, Amylou C. Dueck

Measuring individual true change with PROMIS using IRT-based plausible values

• Special Section: Methodologies for Meaningful Change

Emily H. Ho, Jay Verkuilen, Felix Fischer

Comparison of raw and regression approaches to capturing change on patient-reported outcome measures

• Special Section: Methodologies for Meaningful Change

David A. Andrae, Brandon Foster, J. Devin Peipert

Inferring meaningful change in quality of life with posterior predictive distribution: an alternative to standard error of measurement

• Special Section: Methodologies for Meaningful Change

Yuelin Li

Likely change indexes do not always index likely change; moreover, there is no need for them

• Letter to the Editor

Berend Terluin

Minimally important changes do not always reflect minimally important change; moreover, there is no need for them

• Letter to the Editor

John Devin Peipert, David Cella, Ron D. Hays

Patient-centered care in Coronary Heart Disease: what do you want to measure? A systematic review of reviews on patient-reported outcome measures

• Open Access
• Review

Yolanda Pardo, Olatz Garin, Cristina Oriol, Víctor Zamora, Aida Ribera, Montserrat Ferrer

Fasting during cancer treatment: a systematic review

• Open Access
• Review

U. Drexler, J. Dörfler, J. von Grundherr, N. Erickson, J. Hübner

Lived experience of patients with sleep apnea: a systematic synthesis of qualitative evidence

Ai-Ping Chua, Zhi Yi Soh, Shaffinaz Abd Rahman, Nan Luo, Shefaly Shorey

Evaluating health-related quality of life and subjective wellbeing among infertility patients: a cross-sectional study in mainland China

Zhao Shi, Hongwei Nie, Ling Geng, Xuewen Wang, Gang Chen, Shunping Li

Do mothers or females without children have better health-related quality of life across their reproductive years?

Chuyao Jin, Leigh R. Tooth, Xiaolin Xu, Gita D. Mishra

Pre-treatment quality of life in patients with salivary gland cancer in comparison with those of head and neck cancer patients

Danbee Kang, Eunhye Kim, Nayeon Choi, HeeJung Kim, Juhee Cho, Han-Sin Jeong

Predictors of change in asthma-related quality of life: a longitudinal real-life study in adult asthmatics

• Open Access

Gilles Louis, Benoit Pétré, Florence Schleich, Halehsadat Nekoee Zahrei, Anne-Françoise Donneau, Monique Henket, Virginie Paulus, Françoise Guissard, Michèle Guillaume, Renaud Louis