Quality of Life Research

The current use of the EORTC QLQ-NMIBC24 and QLQ-BLM30 questionnaires for the assessment of health-related quality of life in bladder cancer patients: a systematic review

• Review

E. Rammant, L. Fox, K. Beyer, N. K. Aaronson, R. Chaloner, S. De Padova, F. Liedberg, L. M. Wintner, K. Decaestecker, V. Fonteyne, N. Perdek, H. Wylie, J. W. F. Catto, T. M. Ripping, B. Holzner, M. Van Leeuwen, M. Van Hemelrijck

Patient-reported outcome measures for uncomplicated urinary tract infections in women: a systematic review

• Open Access

Katharina Piontek, Theresa Donhauser, Gesina Kann, Marie Fechtner, Christian Apfelbacher, Michaela Gabes

International Society for Quality of Life Research commentary on the US Food and Drug Administration draft guidance for industry on core patient-reported outcomes in cancer clinical trials

• Open Access
• Commentary

Keri J. S. Brady, John Devin Peipert, Thomas M. Atkinson, Cecilia Pompili, Monica Pinto, James W. Shaw, Jessica Roydhouse

Implications of the syntheses on definition, theory, and methods conducted by the Response Shift – in Sync Working Group

• Open Access
• Commentary

Mirjam A. G. Sprangers, Richard Sawatzky, Antoine Vanier, Jan R. Böhnke, Tolulope Sajobi, Nancy E. Mayo, Lisa M. Lix, Mathilde G. E. Verdam, Frans J. Oort, Véronique Sébille

Hungarian PROMIS-29+2: psychometric properties and population reference values

• Open Access

Balázs Jenei, Alex Bató, Ariel Z. Mitev, Valentin Brodszky, Fanni Rencz

Psychometric validation of the celiac disease-specific quality of life survey (CD-QOL) in adults with celiac disease in the United States

• Open Access

Cara Dochat, Niloofar Afari, Danielle Arigo

Sensitivity to change of generic preference-based instruments (EQ-5D-3L, EQ-5D-5L, and HUI3) in the context of treatment for people with prescription-type opioid use disorder in Canada

• Open Access

David G. T. Whitehurst, Cassandra Mah, Emanuel Krebs, Benjamin Enns, M. Eugenia Socias, Didier Jutras-Aswad, Bernard Le Foll, Bohdan Nosyk

Psychosocial health and quality of life in ICSI and naturally conceived adolescents: a cross-sectional comparison

• Open Access

N. Eisemann, M. Schnoor, E. Rakusa, C. C. Braren-von Stülpnagel, A. Katalinic, M. Ludwig, B. Sonntag, A. K. Ludwig, S. A. Elsner

Religiosity in patients with amyotrophic lateral sclerosis, a cross-country comparison

• Open Access

Katarzyna Ciećwierska, Dorothée Lulé, Olga Helczyk, Krzysztof Nieporęcki, Maksymilian Bielecki, Susanne Baader, Albert C. Ludolph, Magdalena Kuźma-Kozakiewicz

Exploring what matters to residents of Australian aged care facilities with the Happy Life Index: comparison of qualitative responses between pre- and mid-Covid-19 pandemic time points

• Open Access

Carolyn M. Murray, Steve Milanese, Michelle Guerin, Rebecca Bilton, Katherine L. Baldock, Gaynor Parfitt

How to make PROMs work: qualitative insights from leaders at United States hospitals with successful PROMs programs

Colby J. Hyland, Danny Mou, Azan Z. Virji, Claire M. Sokas, Barbara Bokhour, Andrea L. Pusic, Christer Mjåset

Quality of life and psychological distress of patients with advanced cancer in the Philippines

Maria Fidelis Manalo, Sean Ng, Semra Ozdemir, Chetna Malhotra, Eric A. Finkelstein, Kathryn-Daphne Ong, Irene Teo

Measuring Frailty Using Patient-Reported Outcomes (PRO) Data: A Feasibility Study in Patients with Multiple Myeloma

Meena N. Murugappan, Bellinda L. King-Kallimanis, Vishal Bhatnagar, Bindu Kanapuru, Joel F. Farley, Randall D. Seifert, David D. Stenehjem, Ting-Yu Chen, Erica G. Horodniceanu, Paul G. Kluetz

Construct validity and responsiveness of a health-related symptom index for persons either treated or monitored for anal high-grade squamous intraepithelial lesions (HSIL): AMC-A01/-A03

Thomas M. Atkinson, Shelly Lensing, Jeannette Y. Lee, Di Chang, Soo Young Kim, Yuelin Li, Kathleen A. Lynch, Andrew Webb, Susan M. Holland, Erica I. Lubetkin, Stephen Goldstone, Mark H. Einstein, Elizabeth A. Stier, Dorothy J. Wiley, Ronald Mitsuyasu, Isabella Rosa-Cunha, David M. Aboulafia, Shireesha Dhanireddy, Jeffrey T. Schouten, Rebecca Levine, Edward Gardner, Jeffrey Logan, Hillary Dunleavy, Luis F. Barroso, Gary Bucher, Jessica Korman, Benjamin Stearn, Timothy J. Wilkin, Grant Ellsworth, Julia C. Pugliese, Abigail Arons, Jack E. Burkhalter, David Cella, J. Michael Berry-Lawhorn, Joel M. Palefsky

Development and validation of a measure of adolescent and young adult goal-based quality of life (MAYA-GQOL)

Katie Darabos, Carole A. Tucker, Lauren Brumley, Sara King-Dowling, Eliana Butler, Evelyn Stevens, Bridget O’Hagan, Dare Henry-Moss, Janet A. Deatrick, Dava Szalda, Lamia P. Barakat, Lisa A. Schwartz

Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research

• Open Access

Shelley Vanderhout, Beth K. Potter, Maureen Smith, Nancy J. Butcher, Jordan Vaters, Pranesh Chakraborty, John Adams, Michal Inbar-Feigenberg, Martin Offringa, Kathy Speechley, Yannis Trakadis, Ariella Binik

Urban/rural differences in preferences for EQ-5D-5L health states: a study of a multi-ethnic region in China

Meixia Liao, Nan Luo, Kim Rand, Zhihao Yang

A composite measure for patient-reported outcomes in orthopedic care: design principles and validity checks

• Open Access

Lukas Schöner, David Kuklinski, Alexander Geissler, Reinhard Busse, Christoph Pross

Modifying the social responsiveness scale for adaptive administration

Aaron J. Kaat, Lisa A. Croen, John Constantino, Craig J. Newshaffer, Kristen Lyall

Glycemic status and health-related quality of life (HRQOL) in populations at risk of diabetes in two Latin American cities

• Open Access

Luis A. Anillo Arrieta, Karen C. Flórez Lozano, Rafael Tuesca Molina, Tania Acosta Vergara, Sandra Rodríguez Acosta, Pablo Aschner, Yenifer Diaz Montes, Julieth P. Nieto Castillo, Víctor Alfonso Florez-Garcia, Noël C. Barengo

Physical and mental health of breast cancer patients and survivors before and during successive SARS-CoV-2-infection waves

• Open Access

Claudia A. Bargon, Dieuwke R. Mink van der Molen, Marilot C. T. Batenburg, Lilianne E. van Stam, Iris E. van Dam, Inge O. Baas, Liesbeth M. Veenendaal, Wiesje Maarse, Maartje Sier, Ernst J. P. Schoenmaeckers, Josephina P. J. Burgmans, Rhodé M. Bijlsma, Femke van der Leij, Annemiek Doeksen, Danny A. Young-Afat, Helena M. Verkooijen

A qualitative study of lived experiences and needs of advanced cancer patients in Malaysia: Gaps and steps forward

• Open Access

Alene Sze Jing Yong, Mark Wing Loong Cheong, Ednin Hamzah, Siew Li Teoh

Suitability of the animated activity questionnaire for use as computer adaptive test: establishing the AAQ-CAT

• Open Access

Gregor Liegl, Leo D. Roorda, Caroline B. Terwee, Martijn Steultjens, Ewa M. Roos, Francis Guillemin, Maria Grazia Benedetti, Hanne Dagfinrud, Alessandra de Carvalho Bastone, Wilfred F. Peter

Psychometric properties of the Reintegration to Normal Living Index for sepsis survivors

• Open Access

Kathleen Streich, Christiane S. Hartog, Carolin Fleischmann-Struzek, Norman Rose, Anna Bichmann, Miriam Kesselmeier, Fridtjof Schiefenhövel, Malte Schmieding, Sebastian Born